[HTML][HTML] When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care
K Zimmermann, E Bergstraesser, S Engberg… - BMC palliative …, 2016 - Springer
Background Parents facing the death of their child have a strong need for compassionate
professional support. Care services should be based on empirical evidence, be sensitive to …
professional support. Care services should be based on empirical evidence, be sensitive to …
Family presence during resuscitation and invasive procedures: physicians' and nurses' attitudes working in pediatric departments in Greece
A Vavarouta, T Xanthos, L Papadimitriou, E Kouskouni… - Resuscitation, 2011 - Elsevier
BACKGROUND: Family presence during resuscitation and invasive procedures (FPDRAIP)
has been a frequent topic of debate among healthcare personnel worldwide. This paper …
has been a frequent topic of debate among healthcare personnel worldwide. This paper …
In search of social support in the NICU: features, benefits and antecedents of parents' tendency to share with others the premature birth of their baby
G Coppola, R Cassibba, A Bosco… - The Journal of Maternal …, 2013 - Taylor & Francis
Objective: To investigate social sharing among 40 parents (20 couples) of hospitalized
premature newborns, the social network of addressees with whom they shared their …
premature newborns, the social network of addressees with whom they shared their …
Shared decision making during antenatal counselling for anticipated extremely preterm birth
Objective (s) To explore health care providers'(HCPs) perceptions of using shared decision
making (SDM) and to identify facilitators of and barriers to its use with families facing the …
making (SDM) and to identify facilitators of and barriers to its use with families facing the …
What constitutes the best interest of a child? Views of parents, children, and physicians in a pediatric oncology setting
MC de Vries, D Bresters, GJL Kaspers… - AJOB Primary …, 2013 - Taylor & Francis
Background: In pediatrics, the “best interest” standard has become the prevailing standard in
decision making even though it proves difficult to apply in practice. Differences in values can …
decision making even though it proves difficult to apply in practice. Differences in values can …
Neonatal malpractice claims in Italy: how big is the problem and which are the causes?
V Fanos, P Tagliabue, L Greco… - The Journal of …, 2012 - Taylor & Francis
Medical errors are topics of increasing importance in neonatology. Very few data are
available on neonatal malpractice claims. We report the first data obtained in Italy on …
available on neonatal malpractice claims. We report the first data obtained in Italy on …
[HTML][HTML] Characterization of health care provider attitudes toward parental involvement in neonatal resuscitation-related decision making in Mongolia
RM McAdams, RJ McPherson, M Batra… - Maternal and child health …, 2014 - Springer
The aim of this study was to characterize attitudes and practices among health care
providers (HCPs) in Mongolia regarding parental involvement in neonatal resuscitation (NR) …
providers (HCPs) in Mongolia regarding parental involvement in neonatal resuscitation (NR) …
A clinical careography: steering life-and-death decisions through care
LE Navne, MN Svendsen - Pediatrics, 2018 - publications.aap.org
OBJECTIVES: In many Euro-American societies, the ideal of patient and family involvement
in clinical decision-making prevails. This ideal exists alongside the doctor's obligation and …
in clinical decision-making prevails. This ideal exists alongside the doctor's obligation and …
[HTML][HTML] Reassessing the approach to informed consent: the case of unrelated hematopoietic stem cell transplantation in adult thalassemia patients
Introduction The informed consent process is the legal embodiment of the fundamental right
of the individual to make decisions affecting his or her health., and the patient's permission is …
of the individual to make decisions affecting his or her health., and the patient's permission is …
Sedentary behaviour as a risk factor for cardiovascular diseases in pediatric age
C Mameli, V Fabiano, GV Zuccotti - Italian Journal of Pediatrics, 2014 - Springer
The term “sedentary” has historically been used to refer to individuals with low physical
activity levels or not meeting some criterion level of physical activity. According to the recent …
activity levels or not meeting some criterion level of physical activity. According to the recent …