Tools measuring quality of death, dying, and care, completed after death: systematic review of psychometric properties

N Kupeli, B Candy, G Tamura-Rose… - The Patient-Patient …, 2019 - Springer
Introduction Measuring the quality of care at the end of life and/or the quality of dying and
death can be challenging. Some measurement tools seek to assess the quality of care …

Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives' experiences during …

CR Mayland, R Hughes, S Lane… - Palliative …, 2021 - journals.sagepub.com
Background: COVID-19 public health restrictions have affected end-of-life care experiences
for dying patients and their families. Aim: To explore bereaved relatives' experiences of …

Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE …

BD Onwuteaka-Philipsen, HRW Pasman… - Palliative …, 2021 - journals.sagepub.com
Background: During the COVID-19 outbreak restricting measures may have affected the
provision of good end-of-life care for patients with and without COVID-19. Aim: To describe …

End-of-life care quality measures: beyond place of death

S Hoare, B Antunes, MP Kelly… - BMJ supportive & …, 2024 - spcare.bmj.com
Background How quality in healthcare is measured shapes care provision, including how
and what care is delivered. In end-of-life care, appropriate measurement can facilitate …

Dying in times of COVID-19: Experiences in different care settings–An online questionnaire study among bereaved relatives (the CO-LIVE study)

B Yildiz, IJ Korfage, EFE Witkamp… - Palliative …, 2022 - journals.sagepub.com
Background: The COVID-19 pandemic and restricting measures have affected end-of-life
care across different settings. Aim: To compare experiences of bereaved relatives with end …

National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany-study protocol of a mixed-methods project

C Bausewein, F Hodiamont, N Berges, A Ullrich… - BMC palliative …, 2022 - Springer
Abstract Background In the SARS-CoV-2 pandemic, general and specialist Palliative Care
(PC) plays an essential role in health care, contributing to symptom control, psycho-social …

Good quality care for cancer patients dying in hospitals, but information needs unmet: bereaved relatives' survey within seven countries

DF Haugen, KO Hufthammer, C Gerlach… - The …, 2021 - academic.oup.com
Background Recognized disparities in quality of end-of-life care exist. Our aim was to assess
the quality of care for patients dying from cancer, as perceived by bereaved relatives, within …

Assessing quality of care for the dying from the bereaved relatives' perspective: using pre-testing survey methods across seven countries to develop an international …

CR Mayland, C Gerlach, K Sigurdardottir… - Palliative …, 2019 - journals.sagepub.com
Background: The provision of care for dying cancer patients varies on a global basis. In
order to improve care, we need to be able to evaluate the current level of care. One method …

Saying goodbye all alone with no close support was difficult”- Dying during the COVID-19 pandemic: an online survey among bereaved relatives about end-of-life …

K Schloesser, ST Simon, B Pauli, R Voltz… - BMC health services …, 2021 - Springer
Abstract Background During the SARS-CoV2 pandemic, protection measures, as well as
visiting restrictions, had a severe impact on seriously ill and dying patients and their …

How well do we currently care for our dying patients in acute hospitals: the views of the bereaved relatives?

CR Mayland, H Mulholland, M Gambles… - BMJ supportive & …, 2017 - spcare.bmj.com
Background The National Care of the Dying Audit—Hospitals (NCDAH) is used as a method
to evaluate care for dying patients in England. An additional component to the 2013/2014 …