Patient preferences for shared decisions: a systematic review

B Chewning, CL Bylund, B Shah, NK Arora… - Patient education and …, 2012 - Elsevier
OBJECTIVES: Empirical literature on patient decision role preferences regarding treatment
and screening was reviewed to summarize patients' role preferences across measures, time …

[PDF][PDF] Preterm birth: causes, consequences, and prevention

RE Behrman, AS Butler - 2007 - cds.psych.ucla.edu
Although individual behaviors have not been proven to have a strong influence on the risk of
preterm birth, consistent evidence suggests that a constellation of favorable lifestyle factors …

Using a count of neonatal morbidities to predict poor outcome in extremely low birth weight infants: added role of neonatal infection

D Bassler, BJ Stoll, B Schmidt, EV Asztalos… - …, 2009 - publications.aap.org
OBJECTIVE. A count of 3 neonatal morbidities (bronchopulmonary dysplasia, brain injury,
and severe retinopathy of prematurity) strongly predict the risk of death or neurosensory …

Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborns

RD Boss, N Hutton, LJ Sulpar, AM West… - Pediatrics, 2008 - publications.aap.org
OBJECTIVE. The aim of this study was to characterize parental decision-making regarding
delivery room resuscitation for infants born extremely prematurely or with potentially lethal …

Coping with the neonatal intensive care unit experience: parents' strategies and views of staff support

VC Smith, GK SteelFisher, C Salhi… - The Journal of perinatal …, 2012 - journals.lww.com
It is stressful for parents to have an infant in the neonatal intensive care unit (NICU). To
better understand the parents' experience and the role of staff, we examined parental reports …

Information needs of parents of children admitted to a neonatal intensive care unit: A review of the literature (1990–2008)

S De Rouck, M Leys - Patient education and counseling, 2009 - Elsevier
OBJECTIVE: This literature review focuses on information and communication needs of
parents of children admitted to the NICU and on their use of information sources in the …

Perceived role in end-of-life decision making in the NICU affects long-term parental grief response

L Caeymaex, C Jousselme, C Vasilescu… - Archives of Disease in …, 2013 - fn.bmj.com
Background Shared decision making (DM) is increasingly advocated as the most
appropriate model to support parents confronted with end-of-life (EoL) decisions for a child …

How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care

AS Spijkers, A Akkermans, EMA Smets… - Intensive care …, 2022 - Springer
Purpose Intensive care is a stressful environment in which team-family conflicts commonly
occur. If managed poorly, conflicts can have negative effects on all parties involved …

Neonatologist training to guide family decision making for critically ill infants

RD Boss, N Hutton, PK Donohue… - Archives of pediatrics & …, 2009 - jamanetwork.com
Objectives To assess neonatology fellow training in guiding family decision making for high-
risk newborns and in several critical communication skills for physicians in these scenarios …

Living with a crucial decision: a qualitative study of parental narratives three years after the loss of their newborn in the NICU

L Caeymaex, M Speranza, C Vasilescu, C Danan… - PloS one, 2011 - journals.plos.org
Background The importance of involving parents in the end-of-life decision-making-process
(EOL DMP) for their child in the neonatal intensive care unit (NICU) is recognised by ethical …