Quality of life and psychological distress during cancer: a prospective observational study involving young breast cancer female patients

B Muzzatti, F Bomben, C Flaiban, M Piccinin… - BMC cancer, 2020 - Springer
Background Despite the possible traumatic significance of cancer and of the incidence,
prevalence, and survival of young women with breast cancer, these patients are …

Cross-validation of item selection and scoring for the SF-12 Health Survey in nine countries: results from the IQOLA Project

B Gandek, JE Ware, NK Aaronson, G Apolone… - Journal of clinical …, 1998 - Elsevier
Data from general population surveys (n= 1483 to 9151) in nine European countries
(Denmark, France, Germany, Italy, the Netherlands, Norway, Spain, Sweden, and the United …

The Italian SF-36 Health Survey: translation, validation and norming

G Apolone, P Mosconi - Journal of clinical epidemiology, 1998 - Elsevier
This article reports on the development and validation of the Italian SF-36 Health Survey
using data from seven studies in which an Italian version of the SF-36 was administered to …

The factor structure of the SF-36 Health Survey in 10 countries: Results from the IQOLA Project

JE Ware Jr, M Kosinski, B Gandek, NK Aaronson… - Journal of clinical …, 1998 - Elsevier
Studies of the factor structure of the SF-36 Health Survey are an important step in its
construct validation. Its structure is also the psychometric basis for scoring physical and …

The equivalence of SF-36 summary health scores estimated using standard and country-specific algorithms in 10 countries: results from the IQOLA project

JE Ware Jr, B Gandek, M Kosinski, NK Aaronson… - Journal of clinical …, 1998 - Elsevier
Data from general population surveys (n= 1771 to 9151) in nine European countries
(Denmark, France, Germany, Italy, the Netherlands, Norway, Spain, Sweden, and the United …

Evaluation of QoL in neurofibromatosis patients: a systematic review and meta-analysis study

A Sanagoo, L Jouybari, F Koohi, F Sayehmiri - BMC neurology, 2019 - Springer
Background The neurofibromatoses (NF) are a group of genetic disorders that interfere
negatively with the quality of life (QoL) and influence physical, emotional and social …

Riluzole in patients with hereditary cerebellar ataxia: a randomised, double-blind, placebo-controlled trial

S Romano, G Coarelli, C Marcotulli, L Leonardi… - The Lancet …, 2015 - thelancet.com
Background Our previous study in patients with cerebellar ataxias of different causes
showed significant benefit of riluzole after 8 weeks. We aimed to confirm these results in …

Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries: results from the IQOLA Project

B Gandek, JE Ware Jr, NK Aaronson, J Alonso… - Journal of clinical …, 1998 - Elsevier
Data from general population samples in 11 countries (n= 1483 to 9151) were used to
assess data quality and test the assumptions underlying the construction and scoring of …

Health-related quality of life in chronic myeloid leukemia patients receiving long-term therapy with imatinib compared with the general population

F Efficace, M Baccarani, M Breccia… - Blood, The Journal …, 2011 - ashpublications.org
The main objective of this study was to investigate whether patients with chronic myeloid
leukemia (CML) in treatment with long-term therapy imatinib have a different health-related …

Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group

A Gringeri, LG Mantovani, L Scalone, PM Mannucci… - Blood, 2003 - ashpublications.org
Inhibitors in patients with hemophilia are a rare complication of a rare disease causing pain
and disability in patients and impairment to the quality of their lives. Recent advances in …