Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a
significant impact. The diagnostic odyssey undertaken as part of having a child with RD is …

Siblings of children with a chronic illness are among the close family members impacted by
childhood chronic illness. Family roles, routines, and functioning are adjusted to fit the needs …

Objective The objective of the study was to assess clinical mental and physical health
outcomes of siblings of children with chronic health condition (s) compared with siblings of …

Siblings of young people with chronic illness commonly undertake caring responsibilities for
their affected brother/sister, which may encourage maturation, yet may also be perceived as …

Objective Chronic physical health conditions (CPHC) of children affect the whole family. The
aim of the present meta-analysis was to compare levels of internalizing, externalizing, and …

Advances in pediatric critical care have led to increased survival for critically ill children.
Shifting attention from an exclusive focus on saving lives to PICU survivorship in children …

Siblings of children with chronic disorders are at increased risk of mental health problems.
Predictors of siblings' mental health require further study to identify children in need of …

Aim To synthesize and interpret existing qualitative research on the existential experiences
of siblings of children with complex care needs. Design Noblit and Hare's interpretive meta …

Purpose The impact on children who visit an ill sibling in the pediatric intensive care unit
(PICU) is unknown. The aim of this study was to describe the experiences of siblings of …

Many adolescents worldwide (indirectly) grow up with a chronic disease, which may impact
their functioning and wellbeing. The objective of this study is to assess whether adolescents …