Data sharing under the General Data Protection Regulation: time to harmonize law and research ethics?
A Vlahou, D Hallinan, R Apweiler, A Argiles, J Beige… - …, 2021 - Am Heart Assoc
The General Data Protection Regulation (GDPR) became binding law in the European
Union Member States in 2018, as a step toward harmonizing personal data protection …
Union Member States in 2018, as a step toward harmonizing personal data protection …
Sharing is caring—data sharing initiatives in healthcare
T Hulsen - International journal of environmental research and …, 2020 - mdpi.com
In recent years, more and more health data are being generated. These data come not only
from professional health systems, but also from wearable devices. All these 'big data'put …
from professional health systems, but also from wearable devices. All these 'big data'put …
Factors that drive the increasing use of FFPE tissue in basic and translational cancer research
EF Gaffney, PH Riegman, WE Grizzle… - Biotechnic & …, 2018 - Taylor & Francis
The decision to use 10% neutral buffered formalin fixed, paraffin embedded (FFPE) archival
pathology material may be dictated by the cancer research question or analytical technique …
pathology material may be dictated by the cancer research question or analytical technique …
3D face reconstruction: the road to forensics
3D face reconstruction algorithms from images and videos are applied to many fields, from
plastic surgery to the entertainment sector, thanks to their advantageous features. However …
plastic surgery to the entertainment sector, thanks to their advantageous features. However …
The ethical and legal landscape of brain data governance
Neuroscience research is producing big brain data which informs both advancements in
neuroscience research and drives the development of advanced datasets to provide …
neuroscience research and drives the development of advanced datasets to provide …
Patient views on research use of clinical data without consent: legal, but also acceptable?
G Richter, C Borzikowsky, W Lieb, S Schreiber… - European Journal of …, 2019 - nature.com
The research exemption implemented in the new EU General Data Protection Regulation
(EU-GDPR) gives member states leeway in determining whether patient consent is required …
(EU-GDPR) gives member states leeway in determining whether patient consent is required …
Cost analysis of archives in the pathology laboratories: from safety to management
Context Despite the reluctance to invest and the challenging estimation of necessary
supporting costs, optimising the archives seems to be one of the hottest topics in the future …
supporting costs, optimising the archives seems to be one of the hottest topics in the future …
Impact of a centralized archive for pathology laboratories on the health system
A Eccher, A Scarpa, AP Dei Tos - Pathology-Research and Practice, 2023 - Elsevier
Abstractnotepad The pathology archive of any hospital is likely to contain tens of thousands
of slides and formalin-fixed and paraffin-embedded (FFPE) blocks, with their number …
of slides and formalin-fixed and paraffin-embedded (FFPE) blocks, with their number …
Risk mapping for better governance in biobanking: the case of biobank. cy
Introduction: Risk governance is central for the successful and ethical operation of biobanks
and the continued social license for being custodians of samples and data. Risks in …
and the continued social license for being custodians of samples and data. Risks in …
[HTML][HTML] An integrated, scalable, electronic video consent process to power precision health research: large, population-based, cohort implementation and scalability …
C Lajonchere, A Naeim, S Dry, N Wenger… - Journal of Medical …, 2021 - jmir.org
Background Obtaining explicit consent from patients to use their remnant biological samples
and deidentified clinical data for research is essential for advancing precision medicine …
and deidentified clinical data for research is essential for advancing precision medicine …