Data sharing under the General Data Protection Regulation: time to harmonize law and research ethics?

A Vlahou, D Hallinan, R Apweiler, A Argiles, J Beige… - …, 2021 - Am Heart Assoc
The General Data Protection Regulation (GDPR) became binding law in the European
Union Member States in 2018, as a step toward harmonizing personal data protection …

Sharing is caring—data sharing initiatives in healthcare

T Hulsen - International journal of environmental research and …, 2020 - mdpi.com
In recent years, more and more health data are being generated. These data come not only
from professional health systems, but also from wearable devices. All these 'big data'put …

Factors that drive the increasing use of FFPE tissue in basic and translational cancer research

EF Gaffney, PH Riegman, WE Grizzle… - Biotechnic & …, 2018 - Taylor & Francis
The decision to use 10% neutral buffered formalin fixed, paraffin embedded (FFPE) archival
pathology material may be dictated by the cancer research question or analytical technique …

3D face reconstruction: the road to forensics

SM La Cava, G Orrù, M Drahansky, GL Marcialis… - ACM Computing …, 2023 - dl.acm.org
3D face reconstruction algorithms from images and videos are applied to many fields, from
plastic surgery to the entertainment sector, thanks to their advantageous features. However …

The ethical and legal landscape of brain data governance

P Ochang, BC Stahl, D Eke - PLoS One, 2022 - journals.plos.org
Neuroscience research is producing big brain data which informs both advancements in
neuroscience research and drives the development of advanced datasets to provide …

Patient views on research use of clinical data without consent: legal, but also acceptable?

G Richter, C Borzikowsky, W Lieb, S Schreiber… - European Journal of …, 2019 - nature.com
The research exemption implemented in the new EU General Data Protection Regulation
(EU-GDPR) gives member states leeway in determining whether patient consent is required …

Cost analysis of archives in the pathology laboratories: from safety to management

A Eccher, AP Dei Tos, A Scarpa, V L'Imperio… - Journal of Clinical …, 2023 - jcp.bmj.com
Context Despite the reluctance to invest and the challenging estimation of necessary
supporting costs, optimising the archives seems to be one of the hottest topics in the future …

Impact of a centralized archive for pathology laboratories on the health system

A Eccher, A Scarpa, AP Dei Tos - Pathology-Research and Practice, 2023 - Elsevier
Abstractnotepad The pathology archive of any hospital is likely to contain tens of thousands
of slides and formalin-fixed and paraffin-embedded (FFPE) blocks, with their number …

Risk mapping for better governance in biobanking: the case of biobank. cy

K Akyüz, M Goisauf, GM Martin, MT Mayrhofer… - Frontiers in …, 2024 - frontiersin.org
Introduction: Risk governance is central for the successful and ethical operation of biobanks
and the continued social license for being custodians of samples and data. Risks in …

[HTML][HTML] An integrated, scalable, electronic video consent process to power precision health research: large, population-based, cohort implementation and scalability …

C Lajonchere, A Naeim, S Dry, N Wenger… - Journal of Medical …, 2021 - jmir.org
Background Obtaining explicit consent from patients to use their remnant biological samples
and deidentified clinical data for research is essential for advancing precision medicine …