[HTML][HTML] Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research

S Dheensa, A Fenwick, S Shkedi-Rafid, G Crawford… - Genetics in …, 2016 - Elsevier
Purpose The extent of the responsibility of health-care professionals (HCPs) to ensure that
patients' relatives are told of their risk is unclear. Current international guidelines take …

[图书][B] Human nature in an age of biotechnology: The case for mediated posthumanism

T Sharon - 2013 - Springer
The question of what it means to be human surfaces time and again in periods of important
technological change. As if, once detached from the labor of their creation, technologies …

[HTML][HTML] The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization

S Green, L Hillersdal, J Holt, K Hoeyer… - Medicine, Health Care …, 2023 - Springer
Abstract Throughout the Global North, policymakers invest in large-scale integration of
health-data infrastructures to facilitate the reuse of clinical data for administration, research …

[HTML][HTML] The concept of “genetic responsibility” and its meanings: a systematic review of qualitative medical sociology literature

J Leefmann, M Schaper, S Schicktanz - Frontiers in Sociology, 2017 - frontiersin.org
The acquisition of genetic information (GI) confronts both the affected individuals and
healthcare providers with difficult, ambivalent decisions. Genetic responsibility (GR) has …

At, with and beyond risk: expectations of living with the possibility of future dementia

R Milne, A Diaz, S Badger, E Bunnik… - Sociology of health & …, 2018 - Wiley Online Library
Biomedical research aimed at the development of therapies for chronic and late‐onset
conditions increasingly concentrates on the early treatment of symptom‐less disease. This …

[图书][B] Genetic testing: accounts of autonomy, responsibility and blame

M Arribas-Ayllon, S Sarangi, A Clarke - 2013 - taylorfrancis.com
Advances in molecular genetics have led to the increasing availability of genetic testing for a
variety of inherited disorders. While this new knowledge presents many obvious health …

Co-creating health's lively, moving frontiers: Brief observations on the facets and possibilities of non-representational theory

GJ Andrews - Health & Place, 2014 - Elsevier
This paper follows up a recent debate on the potential of non-representational theory in
health geography (see Andrews et al 2014; Kearns 2014; Hanlon 2014; Andrews 2014c) by …

Healthy citizenship beyond autonomy and discipline: Tactical engagements with genetic testing

T Sharon - BioSocieties, 2015 - Springer
In recent decades a model of healthy citizenship has emerged, which construes citizens as
autonomous, responsible and active participants in the management of their health. While …

[HTML][HTML] The diversity of responsibility: the value of explication and pluralization

S Schicktanz, M Schweda - Medicine Studies, 2012 - Springer
Purpose Although the term “responsibility” plays a central role in bioethics and public health,
its meaning and implications are often unclear. This paper defends the importance of a more …

[HTML][HTML] How uncertainty influences lay people's attitudes and risk perceptions concerning predictive genetic testing and risk communication

S Wöhlke, M Schaper, S Schicktanz - Frontiers in Genetics, 2019 - frontiersin.org
The interpretation of genetic information in clinical settings raises moral issues about
adequate risk communication and individual responsibility about one's health behavior …