[HTML][HTML] Using social media to engage knowledge users in health research priority setting: scoping review

S Sivaratnam, K Hwang, A Chee-A-Tow, L Ren… - Journal of Medical …, 2022 - jmir.org
Background The need to include individuals with lived experience (ie, patients, family
members, caregivers, researchers, and clinicians) in health research priority setting is …

Palliative care in brain tumors

T Walbert, NE Stec - Handbook of Clinical Neurology, 2023 - Elsevier
The diagnosis of a brain tumor is a life-changing event for patients and families. High-grade
gliomas (especially glioblastomas) are incurable, and long-term survival is limited …

Social media and professional development for oncology professionals

A Chidharla, A Utengen, DJ Attai, EK Drake… - JCO oncology …, 2022 - ascopubs.org
The use of social media continues to increase in health care and academia. Health care
practice, particularly the oncologic field, is constantly changing because of new knowledge …

[HTML][HTML] An examination of patients and caregivers on Reddit navigating brain Cancer: content analysis of the brain tumor Subreddit

SD Tripathi, PD Parker, AV Prabhu, K Thomas… - JMIR cancer, 2022 - cancer.jmir.org
Background: Occurring in up to 40% of all patients with cancer, the incidence of brain tumors
has caused limited survival, a high psychosocial burden, and an increase in the loss of …

How Advocates Can Support Young Adults Living With Cancer and Their Transition to Palliative Care

EK Drake, LE Weeks, M van Manen… - Qualitative Health …, 2024 - journals.sagepub.com
While the cancer advocacy community has been pivotal in progressing oncology care,
supporting young adults with advanced cancer transitioning to palliative care continues to …

Pragmatic considerations in incorporating stakeholder engagement into a palliative care transitions study

C de Forcrand, M Flannery, J Cho, NR Pidatala… - Medical …, 2021 - journals.lww.com
Background: Stakeholder involvement in health care research has been shown to improve
research development, processes, and dissemination. The literature is developing on …

Identifying research priorities and essential elements of palliative care services for people facing malignant brain tumors: A participatory co-design approach

L Salmi, S Otis-Green, A Hayden… - Neuro-Oncology …, 2024 - academic.oup.com
Background Primary malignant brain tumors (ie, brain cancer) impact the quality of life (QoL)
for patients and care partners in disease-specific ways involving cognition and …

[HTML][HTML] The Impact of Brain Tumors on Emotional and Behavioral Functioning

RR Samman, JH Timraz, AM Al-Nakhli, S Haidar… - Cureus, 2024 - pmc.ncbi.nlm.nih.gov
While the physical manifestations of brain tumors are well-documented, their impact on the
emotional and psychological landscape of patients is of equal importance. Patients …

Quality aspects of hospital-based physiotherapy from the perspective of key stakeholders: a qualitative study

RA Steenbruggen, G Dolleman… - BMJ open …, 2022 - bmjopenquality.bmj.com
Background For the design of a robust quality system for hospital-based physiotherapy, it is
important to know what key stakeholders consider quality to be. Objective To explore key …

Social media for palliative and end-of-life care research: a systematic review

Y Wang, J Koffman, W Gao, Y Zhou… - BMJ Supportive & …, 2024 - spcare.bmj.com
Background Social media with real-time content and a wide-reaching user network opens
up more possibilities for palliative and end-of-life care (PEoLC) researchers who have …