[HTML][HTML] Using social media to engage knowledge users in health research priority setting: scoping review
S Sivaratnam, K Hwang, A Chee-A-Tow, L Ren… - Journal of Medical …, 2022 - jmir.org
Background The need to include individuals with lived experience (ie, patients, family
members, caregivers, researchers, and clinicians) in health research priority setting is …
members, caregivers, researchers, and clinicians) in health research priority setting is …
Palliative care in brain tumors
T Walbert, NE Stec - Handbook of Clinical Neurology, 2023 - Elsevier
The diagnosis of a brain tumor is a life-changing event for patients and families. High-grade
gliomas (especially glioblastomas) are incurable, and long-term survival is limited …
gliomas (especially glioblastomas) are incurable, and long-term survival is limited …
Social media and professional development for oncology professionals
The use of social media continues to increase in health care and academia. Health care
practice, particularly the oncologic field, is constantly changing because of new knowledge …
practice, particularly the oncologic field, is constantly changing because of new knowledge …
[HTML][HTML] An examination of patients and caregivers on Reddit navigating brain Cancer: content analysis of the brain tumor Subreddit
Background: Occurring in up to 40% of all patients with cancer, the incidence of brain tumors
has caused limited survival, a high psychosocial burden, and an increase in the loss of …
has caused limited survival, a high psychosocial burden, and an increase in the loss of …
How Advocates Can Support Young Adults Living With Cancer and Their Transition to Palliative Care
While the cancer advocacy community has been pivotal in progressing oncology care,
supporting young adults with advanced cancer transitioning to palliative care continues to …
supporting young adults with advanced cancer transitioning to palliative care continues to …
Pragmatic considerations in incorporating stakeholder engagement into a palliative care transitions study
C de Forcrand, M Flannery, J Cho, NR Pidatala… - Medical …, 2021 - journals.lww.com
Background: Stakeholder involvement in health care research has been shown to improve
research development, processes, and dissemination. The literature is developing on …
research development, processes, and dissemination. The literature is developing on …
Identifying research priorities and essential elements of palliative care services for people facing malignant brain tumors: A participatory co-design approach
Background Primary malignant brain tumors (ie, brain cancer) impact the quality of life (QoL)
for patients and care partners in disease-specific ways involving cognition and …
for patients and care partners in disease-specific ways involving cognition and …
[HTML][HTML] The Impact of Brain Tumors on Emotional and Behavioral Functioning
RR Samman, JH Timraz, AM Al-Nakhli, S Haidar… - Cureus, 2024 - pmc.ncbi.nlm.nih.gov
While the physical manifestations of brain tumors are well-documented, their impact on the
emotional and psychological landscape of patients is of equal importance. Patients …
emotional and psychological landscape of patients is of equal importance. Patients …
Quality aspects of hospital-based physiotherapy from the perspective of key stakeholders: a qualitative study
RA Steenbruggen, G Dolleman… - BMJ open …, 2022 - bmjopenquality.bmj.com
Background For the design of a robust quality system for hospital-based physiotherapy, it is
important to know what key stakeholders consider quality to be. Objective To explore key …
important to know what key stakeholders consider quality to be. Objective To explore key …
Social media for palliative and end-of-life care research: a systematic review
Y Wang, J Koffman, W Gao, Y Zhou… - BMJ Supportive & …, 2024 - spcare.bmj.com
Background Social media with real-time content and a wide-reaching user network opens
up more possibilities for palliative and end-of-life care (PEoLC) researchers who have …
up more possibilities for palliative and end-of-life care (PEoLC) researchers who have …