Systematic review of the relationship between autism stigma and informal caregiver mental health
C Papadopoulos, A Lodder, G Constantinou… - Journal of autism and …, 2019 - Springer
Abstract Families play a crucial role in determining the mental health of the autistic individual
(s) they are caring for. However, the stigma associated with autism can impair caregiver …
(s) they are caring for. However, the stigma associated with autism can impair caregiver …
Quality of life indicators for individuals with intellectual disabilities: Extending current practice
Quality of life is a social construct that is measured by what are considered to be its most
appropriate indicators. Quality of life measurement in intellectual disability reflects a variety …
appropriate indicators. Quality of life measurement in intellectual disability reflects a variety …
The concept of quality of life and its role in enhancing human rights in the field of intellectual disability
Background The changed societal views of persons with disabilities are reflected in the
2006 United Nations Convention on the Rights of Persons with Disabilities. However, what …
2006 United Nations Convention on the Rights of Persons with Disabilities. However, what …
Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables
S Werner, C Shulman - Research in developmental disabilities, 2013 - Elsevier
Studies have shown that stigmatization is linked to lower quality of life; however, only scant
research has examined the association between family caregivers' internalization of stigma …
research has examined the association between family caregivers' internalization of stigma …
Severe childhood autism: The family lived experience
JB Gorlin, CP McAlpine, A Garwick, E Wieling - Journal of pediatric nursing, 2016 - Elsevier
This research examined the experiences of families living with a child with severe autism.
There is limited literature on the experiences of families when a child has severe autism as …
There is limited literature on the experiences of families when a child has severe autism as …
Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative
RP Hastings - International review of research in developmental …, 2016 - Elsevier
A common narrative relating to families of children with intellectual and developmental
disabilities (IDD) is that the child with IDD has a negative impact on the other members of …
disabilities (IDD) is that the child with IDD has a negative impact on the other members of …
Family quality of life of South African families raising children with autism spectrum disorder
This article describes the family quality of life among families who are raising a young child
with autism spectrum disorder. Survey research was conducted with 180 families of children …
with autism spectrum disorder. Survey research was conducted with 180 families of children …
Unhappy (and happy) in their own way: A developmental psychopathology perspective on quality of life for families living with developmental disability with and …
E Gardiner, G Iarocci - Research in developmental disabilities, 2012 - Elsevier
Research on families living with developmental disability generally and autism specifically is
dominated by a deficit view that elicits an elaborate representation of problems and risks …
dominated by a deficit view that elicits an elaborate representation of problems and risks …
Family quality of life among families with a child who has a severe neurodevelopmental disability: Impact of family and child socio-demographic factors
We aimed to examine family quality of life (FQOL) of Northern Israeli families having a child
with a severe neurodevelopmental disability and its relation to socio-demographics. The …
with a severe neurodevelopmental disability and its relation to socio-demographics. The …
Communication support needs in adults with intellectual disabilities and its relation to quality of life
Research suggests that individuals with intellectual disabilities (ID) experience difficulties in
communication, ranging from intelligibility issues to more severe problems in the use and …
communication, ranging from intelligibility issues to more severe problems in the use and …