Neurological diseases cause physical, psychosocial, and spiritual or existential suffering
from the time of their diagnosis. Palliative care focuses on improving quality of life for people …

The Medicare hospice benefit was originally designed around a cancer disease paradigm
but increasingly serves people living with dementia. At this time, almost half of all older …

Experiencing the death of a family member and providing end-of-life caregiving can be
stressful on families–this is well-documented in both the caregiving and bereavement …

Background People with dementia (PWD) are at high risk for hospice disenrollment, yet little
is known about patterns of disenrollment among the growing number of hospice enrollees …

Background Little is known about post-discharge outcomes among patients who were
discharged alive from hospice. Objective To compare healthcare utilization and mortality …

Background: Hospice is intended to promote the comfort and quality of life of dying patients
and their families. When patients are discharged from hospice prior to death (ie, experience …

Care partners (CP) of people with dementia (PWD) report that decisions about care setting
are aided by the support of healthcare providers. However, providers are often …

With advanced age, older adults (aged≥ 65 years) become increasingly aware of the finality
of their lives and many accept death as an unavoidable universal event. Over the past few …

Importance Transitions in care settings following live discharge from hospice care are
burdensome for patients and families. Factors contributing to risk of burdensome transitions …

Background A growing number of persons living with dementia (PLwD) die at home with
hospice care. However, there is limited information describing the needs of dying …