Supportive and symptomatic management of amyotrophic lateral sclerosis

EV Hobson, CJ McDermott - Nature Reviews Neurology, 2016 - nature.com
The main aims in the care of individuals with amyotrophic lateral sclerosis (ALS) are to
minimize morbidity and maximize quality of life. Although no cure exists for ALS, supportive …

Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach

A Hogden, G Foley, RD Henderson… - Journal of …, 2017 - Taylor & Francis
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, leading to
death within an average of 2–3 years. A cure is yet to be found, and a single disease …

[HTML][HTML] Management of patients with neuromuscular disorders at the time of the SARS-CoV-2 pandemic

G Costamagna, E Abati, N Bresolin, GP Comi… - Journal of …, 2021 - Springer
The novel Coronavirus disease-19 (COVID-19) pandemic has posed several challenges for
neuromuscular disorder (NMD) patients. The risk of a severe course of SARS-CoV-2 …

Telehealth applications for outpatients with neuromuscular or musculoskeletal disorders

IM Howard, MS Kaufman - Muscle & nerve, 2018 - Wiley Online Library
Telehealth describes the provision of medical services remotely through technology, and
may enhance patient access to specialty care services. Although teleneurology has …

[HTML][HTML] Telehealth in neurodegenerative diseases: opportunities and challenges for patients and physicians

F De Marchi, E Contaldi, L Magistrelli, R Cantello… - Brain Sciences, 2021 - mdpi.com
Telehealth, by definition, is distributing health-related services while using electronic
technologies. This narrative Review describes the technological health services …

The current use of telehealth in ALS care and the barriers to and facilitators of implementation: a systematic review

J Helleman, ET Kruitwagen… - … lateral sclerosis and …, 2020 - Taylor & Francis
Objective: We aimed to provide an overview of telehealth used in the care for patients with
amyotrophic lateral sclerosis (ALS), and identify the barriers to and facilitators of its …

Telemedicine is a useful tool to deliver care to patients with Amyotrophic Lateral Sclerosis during COVID-19 pandemic: results from Southern Italy

R Capozzo, S Zoccolella, M Musio… - … Lateral Sclerosis and …, 2020 - Taylor & Francis
Background Teleneurology is an effective tool for the rapid evaluation of patients in remote
locations with a well-established use in stroke and epilepsy. To date its adoption for …

[HTML][HTML] Canadian best practice recommendations for the management of amyotrophic lateral sclerosis

C Shoesmith, A Abrahao, T Benstead, M Chum… - Cmaj, 2020 - Can Med Assoc
The care and management of patients with ALS should always be patient focused, with
attention to holistic and emotional aspects of well-being. It is the patient who ultimately …

Incorporation of telehealth into a multidisciplinary ALS Clinic: feasibility and acceptability

A Geronimo, C Wright, A Morris, S Walsh… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
Objective: The practice of telehealth in the care of patients with ALS has received little
attention, but has the potential to change the multidisciplinary care model. This study was …

[HTML][HTML] A road map for remote digital health technology for motor neuron disease

RPA van Eijk, A Beelen, ET Kruitwagen… - Journal of Medical …, 2021 - jmir.org
Despite recent and potent technological advances, the real-world implementation of remote
digital health technology in the care and monitoring of patients with motor neuron disease …