Defining pediatric chronic critical illness for clinical care, research, and policy

MC Shapiro, CM Henderson, N Hutton… - Hospital …, 2017 - publications.aap.org
Chronically critically ill pediatric patients represent an emerging population in NICUs and
PICUs. Chronic critical illness has been recognized and defined in the adult population, but …

[HTML][HTML] Chronic illness in pediatric critical care

S Murphy Salem, RJ Graham - Frontiers in Pediatrics, 2021 - frontiersin.org
Children and Youth with Special Healthcare Needs (CYSHCN), children with medical
complexity (CMC), and children with chronic, critical illness (CCI) represent pediatric …

Delirium in a tertiary PICU: risk factors and outcomes

LA Dervan, JL Di Gennaro, RWD Farris… - Pediatric Critical Care …, 2020 - journals.lww.com
Objectives: To determine risk factors and outcomes associated with delirium in PICU
patients. Design: Retrospective cohort study. Setting: Thirty-two–bed PICU within a tertiary …

Home health care availability and discharge delays in children with medical complexity

R Maynard, E Christensen, R Cady, A Jacob… - …, 2019 - publications.aap.org
BACKGROUND: An increasing proportion of pediatric hospital days are attributed to
technology-dependent children. The impact that a pediatric home care nursing (HCN) …

Epidemiology of intensive care admissions for children in the US from 2001 to 2019

EY Killien, MR Keller, RS Watson, ME Hartman - JAMA pediatrics, 2023 - jamanetwork.com
Importance Estimates of the number of US children receiving intensive care unit (ICU) care
and ICU admission patterns over time are lacking. Objective To determine how ICU …

Defining pediatric chronic critical illness: a scoping review

DJ Zorko, JD McNally, B Rochwerg… - Pediatric Critical Care …, 2023 - journals.lww.com
OBJECTIVES: Children with chronic critical illness (CCI) are hypothesized to be a high-risk
patient population with persistent multiple organ dysfunction and functional morbidities …

End-of-life and bereavement care in pediatric intensive care units

ML Suttle, TL Jenkins, RF Tamburro - Pediatric Clinics, 2017 - pediatric.theclinics.com
Overall pediatric mortality is decreasing in the United States. In 1980, more than 64,000
infants and children less than 15 years of age died in the United States. In striking contrast …

The relationship of parental health literacy to health outcomes of children with medical complexity

PR Lawrence, I Feinberg, R Spratling - Journal of Pediatric Nursing, 2021 - Elsevier
Theoretical principles Children with medical complexity experience negative health
outcomes despite the high costs associated with their care. There is growing evidence that …

[HTML][HTML] Longitudinal changes in clinical characteristics and outcomes for children using long-term non-invasive ventilation

ML Castro-Codesal, K Dehaan, PK Bedi, GN Bendiak… - PLoS …, 2018 - journals.plos.org
Objectives To describe longitudinal trends in long-term non-invasive ventilation (NIV) use in
children including changes in clinical characteristics, NIV technology, and outcomes …

Beyond the bulging binder: Family-centered design of a digital health information management system for caregivers of children living with health complexity

K Sepehri, L Holsti, S Niasati, V Chan… - Proceedings of the 2023 …, 2023 - dl.acm.org
Children Living with Health Complexity (CLHC), whose multiple, severe and chronic
conditions differentiate them from those with “complicated” conditions, rely life-long on a vast …