Making autism research inclusive by attending to intersectionality: A review of the research ethics literature

MA Cascio, JA Weiss, E Racine - Review Journal of Autism and …, 2021 - Springer
Growth in autism research necessitates corresponding attention to autism research ethics,
including ethical and meaningful inclusion of diverse participants. This paper presents the …

Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges

S Van der Weele, F Bredewold - Journal of Intellectual & …, 2021 - Taylor & Francis
Background While qualitative research on intellectual disability is on the rise, researchers
have frequently reported that their methods bring methodological and ethical challenges …

Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities

A Meltzer, J Kramer - Disability & Society, 2016 - Taylor & Francis
Research about siblings where one has a disability has historically focused on the
psychological outcomes of siblings of people with disabilities and has very rarely asked …

'Recognized, valued and supported'? The experiences of adult siblings of people with autism plus learning disability

R Tozer, K Atkin - Journal of Applied Research in Intellectual …, 2015 - Wiley Online Library
Background The potential of adult siblings to offer long‐term support to a brother or sister
with autism is rarely realized. To understand this, our study explores the expectations of …

Engaging with and navigating limbo: Lived experiences of siblings of adults with autism spectrum disorders

H Noonan, I O'Donoghue… - Journal of Applied …, 2018 - Wiley Online Library
Background Supporting an adult with autism spectrum disorder (ASD) can be associated
with family stress but also with personal growth and resilience. Research providing insight …

“I don't care anymore if she wants to cry through the whole conversation, because it needs to be addressed”: Adult siblings' experiences of the dynamics of future care …

M Leane - Journal of Applied Research in Intellectual …, 2020 - Wiley Online Library
Background In families with a member with a developmental disability (DD), future care
planning is limited (Brennan et al., Journal of Applied Research in Intellectual Disabilities …

The child with autism spectrum disorder: The perceptions of siblings

T Macedo Costa, APS Pereira - Support for Learning, 2019 - Wiley Online Library
This study sets out to understand and analyse the perceptions of six children regarding the
Autism Spectrum Disorder of their brother or sister. The present research encompasses a …

A qualitative study of an online Makaton choir for individuals with learning difficulties

H Quigley, R MacDonald - international journal of community …, 2022 - intellectdiscover.com
This qualitative study investigates the experiences of individuals with learning difficulties
who participate in Makaton choirs. Semi-structured interviews were conducted with five choir …

Siblings caring for siblings with intellectual disabilities: naming and negotiating emotional tensions

M Leane - Social Science & Medicine, 2019 - Elsevier
Extended longevity among adults with Intellectual Disabilities (ID) and increasing rates of
diagnosis of Autism Spectrum Disorders (ASD) mean that parents are unlikely to remain …

Do health consultations for people with learning disabilities meet expectations? A narrative literature review

HM Chapman, A Lovell… - British Journal of Learning …, 2018 - Wiley Online Library
Accessible Summary People with learning disabilities have unmet health needs. Annual
health checks were brought in to improve health care, but do they work? The research …