Making autism research inclusive by attending to intersectionality: A review of the research ethics literature
Growth in autism research necessitates corresponding attention to autism research ethics,
including ethical and meaningful inclusion of diverse participants. This paper presents the …
including ethical and meaningful inclusion of diverse participants. This paper presents the …
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges
S Van der Weele, F Bredewold - Journal of Intellectual & …, 2021 - Taylor & Francis
Background While qualitative research on intellectual disability is on the rise, researchers
have frequently reported that their methods bring methodological and ethical challenges …
have frequently reported that their methods bring methodological and ethical challenges …
Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities
Research about siblings where one has a disability has historically focused on the
psychological outcomes of siblings of people with disabilities and has very rarely asked …
psychological outcomes of siblings of people with disabilities and has very rarely asked …
'Recognized, valued and supported'? The experiences of adult siblings of people with autism plus learning disability
R Tozer, K Atkin - Journal of Applied Research in Intellectual …, 2015 - Wiley Online Library
Background The potential of adult siblings to offer long‐term support to a brother or sister
with autism is rarely realized. To understand this, our study explores the expectations of …
with autism is rarely realized. To understand this, our study explores the expectations of …
Engaging with and navigating limbo: Lived experiences of siblings of adults with autism spectrum disorders
H Noonan, I O'Donoghue… - Journal of Applied …, 2018 - Wiley Online Library
Background Supporting an adult with autism spectrum disorder (ASD) can be associated
with family stress but also with personal growth and resilience. Research providing insight …
with family stress but also with personal growth and resilience. Research providing insight …
“I don't care anymore if she wants to cry through the whole conversation, because it needs to be addressed”: Adult siblings' experiences of the dynamics of future care …
M Leane - Journal of Applied Research in Intellectual …, 2020 - Wiley Online Library
Background In families with a member with a developmental disability (DD), future care
planning is limited (Brennan et al., Journal of Applied Research in Intellectual Disabilities …
planning is limited (Brennan et al., Journal of Applied Research in Intellectual Disabilities …
The child with autism spectrum disorder: The perceptions of siblings
T Macedo Costa, APS Pereira - Support for Learning, 2019 - Wiley Online Library
This study sets out to understand and analyse the perceptions of six children regarding the
Autism Spectrum Disorder of their brother or sister. The present research encompasses a …
Autism Spectrum Disorder of their brother or sister. The present research encompasses a …
A qualitative study of an online Makaton choir for individuals with learning difficulties
H Quigley, R MacDonald - international journal of community …, 2022 - intellectdiscover.com
This qualitative study investigates the experiences of individuals with learning difficulties
who participate in Makaton choirs. Semi-structured interviews were conducted with five choir …
who participate in Makaton choirs. Semi-structured interviews were conducted with five choir …
Siblings caring for siblings with intellectual disabilities: naming and negotiating emotional tensions
M Leane - Social Science & Medicine, 2019 - Elsevier
Extended longevity among adults with Intellectual Disabilities (ID) and increasing rates of
diagnosis of Autism Spectrum Disorders (ASD) mean that parents are unlikely to remain …
diagnosis of Autism Spectrum Disorders (ASD) mean that parents are unlikely to remain …
Do health consultations for people with learning disabilities meet expectations? A narrative literature review
HM Chapman, A Lovell… - British Journal of Learning …, 2018 - Wiley Online Library
Accessible Summary People with learning disabilities have unmet health needs. Annual
health checks were brought in to improve health care, but do they work? The research …
health checks were brought in to improve health care, but do they work? The research …