2023 ESC Guidelines for the management of cardiomyopathies: Developed by the task force on the management of cardiomyopathies of the European Society of …
E Arbelo, A Protonotarios, JR Gimeno… - European heart …, 2023 - academic.oup.com
• The specific situation of the patient. Unless otherwise provided for by national regulations,
off-label use of medication should be limited to situations where it is in the patient's interest …
off-label use of medication should be limited to situations where it is in the patient's interest …
Assessing genetic literacy awareness and knowledge gaps in the US population: results from the Health Information National Trends Survey
Abstract Background/Aims: Public understanding of the role of genetics in disease risk is key
to appropriate disease prevention and detection. This study assessed the current extent of …
to appropriate disease prevention and detection. This study assessed the current extent of …
[PDF][PDF] Clinical cancer advances 2017: annual report on progress against cancer from the American Society of Clinical Oncology
HJ Burstein, L Krilov, JB Aragon-Ching… - Journal of Clinical …, 2017 - ioncol.com
Cancer is one of the world's most pressing health care challenges. On the whole, research
progress from one year to the next is incremental, and true breakthroughs are exceptional …
progress from one year to the next is incremental, and true breakthroughs are exceptional …
[HTML][HTML] Cancer Health Assessments Reaching Many (CHARM): a clinical trial assessing a multimodal cancer genetics services delivery program and its impact on …
Advances in the application of genomic technologies in clinical care have the potential to
increase existing healthcare disparities. Studies have consistently shown that only a fraction …
increase existing healthcare disparities. Studies have consistently shown that only a fraction …
Effective communication in the era of precision medicine: A pilot intervention with low health literacy patients to improve genetic counseling communication
G Joseph, R Lee, RJ Pasick, C Guerra… - European Journal of …, 2019 - Elsevier
Effective communication, where all parties share a common understanding, is necessary to
realize the promise of Genomic Medicine. It is especially salient given the imperative to …
realize the promise of Genomic Medicine. It is especially salient given the imperative to …
[PDF][PDF] Understanding changes in genetic literacy over time and in genetic research participants
As genomic and personalized medicine becomes mainstream, assessing and
understanding the public's genetic literacy is paramount. Because genetic research drives …
understanding the public's genetic literacy is paramount. Because genetic research drives …
Communication of cancer-related genetic and genomic information: A landscape analysis of reviews
EB Peterson, WS Chou, A Gaysynsky… - Translational …, 2018 - academic.oup.com
Cancer-related genetic and genomic testing (CGT) is changing cancer care by personalizing
care options, leading to an era of precision medicine. Advances in and increased use of …
care options, leading to an era of precision medicine. Advances in and increased use of …
[HTML][HTML] Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: a systematic literature review
GE Calabrò, M Sassano, A Tognetto, S Boccia - Frontiers in Genetics, 2020 - frontiersin.org
Background: The huge development of omics sciences is changing the classical medical
approach and making new technologies available. In this context, education of citizens is …
approach and making new technologies available. In this context, education of citizens is …
Ethical concerns relating to genetic risk scores for suicide
Genome‐wide association studies (GWAS) provide valuable information in research
contexts regarding genomic changes that contribute to risks for complex psychiatric …
contexts regarding genomic changes that contribute to risks for complex psychiatric …
[HTML][HTML] Big advocacy, little recognition: the hidden work of Black patients in precision medicine
LH Gerido, K Resnicow, EM Stoffel, T Tomlin… - Journal of Community …, 2023 - Springer
As cost-effective next-generation genome sequencing rapidly develops, calls for greater
inclusion of Black people in genomic research, policy, and practice are necessary for …
inclusion of Black people in genomic research, policy, and practice are necessary for …