2023 ESC Guidelines for the management of cardiomyopathies: Developed by the task force on the management of cardiomyopathies of the European Society of …

E Arbelo, A Protonotarios, JR Gimeno… - European heart …, 2023 - academic.oup.com
• The specific situation of the patient. Unless otherwise provided for by national regulations,
off-label use of medication should be limited to situations where it is in the patient's interest …

Assessing genetic literacy awareness and knowledge gaps in the US population: results from the Health Information National Trends Survey

M Krakow, CL Ratcliff, BW Hesse… - Public Health …, 2018 - karger.com
Abstract Background/Aims: Public understanding of the role of genetics in disease risk is key
to appropriate disease prevention and detection. This study assessed the current extent of …

[PDF][PDF] Clinical cancer advances 2017: annual report on progress against cancer from the American Society of Clinical Oncology

HJ Burstein, L Krilov, JB Aragon-Ching… - Journal of Clinical …, 2017 - ioncol.com
Cancer is one of the world's most pressing health care challenges. On the whole, research
progress from one year to the next is incremental, and true breakthroughs are exceptional …

[HTML][HTML] Cancer Health Assessments Reaching Many (CHARM): a clinical trial assessing a multimodal cancer genetics services delivery program and its impact on …

KF Mittendorf, TL Kauffman, LM Amendola… - Contemporary clinical …, 2021 - Elsevier
Advances in the application of genomic technologies in clinical care have the potential to
increase existing healthcare disparities. Studies have consistently shown that only a fraction …

Effective communication in the era of precision medicine: A pilot intervention with low health literacy patients to improve genetic counseling communication

G Joseph, R Lee, RJ Pasick, C Guerra… - European Journal of …, 2019 - Elsevier
Effective communication, where all parties share a common understanding, is necessary to
realize the promise of Genomic Medicine. It is especially salient given the imperative to …

[PDF][PDF] Understanding changes in genetic literacy over time and in genetic research participants

ID Little, LM Koehly, C Gunter - The American Journal of Human Genetics, 2022 - cell.com
As genomic and personalized medicine becomes mainstream, assessing and
understanding the public's genetic literacy is paramount. Because genetic research drives …

Communication of cancer-related genetic and genomic information: A landscape analysis of reviews

EB Peterson, WS Chou, A Gaysynsky… - Translational …, 2018 - academic.oup.com
Cancer-related genetic and genomic testing (CGT) is changing cancer care by personalizing
care options, leading to an era of precision medicine. Advances in and increased use of …

[HTML][HTML] Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: a systematic literature review

GE Calabrò, M Sassano, A Tognetto, S Boccia - Frontiers in Genetics, 2020 - frontiersin.org
Background: The huge development of omics sciences is changing the classical medical
approach and making new technologies available. In this context, education of citizens is …

Ethical concerns relating to genetic risk scores for suicide

A Docherty, B Kious, T Brown, L Francis… - American Journal of …, 2021 - Wiley Online Library
Genome‐wide association studies (GWAS) provide valuable information in research
contexts regarding genomic changes that contribute to risks for complex psychiatric …

[HTML][HTML] Big advocacy, little recognition: the hidden work of Black patients in precision medicine

LH Gerido, K Resnicow, EM Stoffel, T Tomlin… - Journal of Community …, 2023 - Springer
As cost-effective next-generation genome sequencing rapidly develops, calls for greater
inclusion of Black people in genomic research, policy, and practice are necessary for …