[HTML][HTML] A literature review on the burden of Alzheimer's disease on care partners

KS Frederiksen, KL Lanctôt, W Weidner… - Journal of …, 2023 - content.iospress.com
Background: Many individuals with Alzheimer's disease (AD) are dependent on
nonprofessional care partners. Providing informal care can result in emotional, physical, and …

[HTML][HTML] Financial, legal, and functional challenges of providing care for people living with dementia and needs for a digital platform: interview study among family …

Q Fan, L DuBose, MG Ory, S Lee, MN Hoang, J Vennatt… - JMIR aging, 2023 - aging.jmir.org
Background Alzheimer disease and Alzheimer disease–related dementia represent
complex neuropathologies directly challenging individuals, their families, and communities …

[HTML][HTML] Understanding barriers along the patient journey in Alzheimer's disease using social media data

AA Tahami Monfared, Y Stern, S Doogan… - Neurology and …, 2023 - Springer
abstract Introduction We speculated that social media data from Alzheimer's disease (AD)
stakeholders (patients, caregivers, and clinicians) could identify barriers along the patient …

Stakeholder insights in Alzheimer's disease: natural language processing of social media conversations

AA Tahami Monfared, Y Stern… - Journal of …, 2022 - content.iospress.com
Background: Social media data may be especially effective for studying diseases associated
with high stigma, such as Alzheimer's disease (AD). Objective: We primarily aimed to identify …

Mapping dementia caregivers' comments on social media with evidence-based care strategies for memory loss and confusion

N Zou, Y Ji, B Xie, D He, Z Luo - Proceedings of the 2023 Conference on …, 2023 - dl.acm.org
Dementia caregivers widely turn to social media for much needed information and support.
Prior research on caregivers' online information exchange has focused on the original …

[HTML][HTML] Dementia caregiver experiences and recommendations for using the behavioral and environmental sensing and intervention system at home: usability and …

MS Anderson, A Bankole, N Homdee, BA Mitchell… - JMIR aging, 2021 - aging.jmir.org
Background Caregiver burden associated with dementia-related agitation is one of the most
common reasons for a community-dwelling person living with dementia to transition to a …

Thematic Analysis of Alzheimer's Medication Management Discussion in a Non-Moderated Online Forum

J Liu, K Meyer, A Glassner… - Western Journal of …, 2024 - journals.sagepub.com
Background: Managing medications for Alzheimer's disease and related dementias is
challenging for caregivers. Information about caregivers' strategies to manage these …