The measurement of collaboration within healthcare settings: a systematic review of measurement properties of instruments

SJ Walters, C Stern, S Robertson-Malt - JBI Evidence Synthesis, 2016 - journals.lww.com
Background There is a growing call by consumers and governments for healthcare to adopt
systems and approaches to care to improve patient safety. Collaboration within healthcare …

Neuro‐Q oL health‐related quality of life measurement system: V alidation in P arkinson's disease

CJ Nowinski, A Siderowf, T Simuni… - Movement …, 2016 - Wiley Online Library
ABSTRACT Introduction Neuro‐QoL is a multidimensional patient‐reported outcome
measurement system assessing aspects of physical, mental, and social health identified by …

Food insecurity and mental well-being among low-income families during COVID-19 pandemic

J Ling, P Duren, LB Robbins - American Journal of Health …, 2022 - journals.sagepub.com
Purpose To examine the interaction effects of adult and child food insecurity on parents' and
children's mental well-being. Design An online survey study was conducted. Setting Two …

Effectiveness of a self-management program to improve cognition and quality of life in epilepsy: a pragmatic, randomized, multicenter trial

NA Streltzov, SS Schmidt, LM Schommer, W Zhao… - Neurology, 2022 - AAN Enterprises
Background and Objectives We conducted a multisite, pragmatic replication trial at 4 New
England epilepsy centers to determine the effectiveness of Home-Based Self-Management …

Sirolimus treatment in Sturge-Weber syndrome

AJ Sebold, AM Day, J Ewen, J Adamek, A Byars… - Pediatric …, 2021 - Elsevier
Abstract Background Sturge-Weber syndrome is a rare neurovascular disorder associated
with capillary malformation, seizures, cognitive impairments, and stroke-like episodes …

Proceedings from the consensus conference on trauma patient-reported outcome measures

JV Sakran, H Ezzeddine, WC Schwab… - Journal of the …, 2020 - journals.lww.com
In the US, injury accounts for nearly 200,000 deaths and more than 30 million nonfatal
injuries annually. 1 The survival rate after major trauma has improved steadily since the …

Eculizumab improves fatigue in refractory generalized myasthenia gravis

H Andersen, R Mantegazza, JJ Wang, F O'Brien… - Quality of Life …, 2019 - Springer
Purpose To evaluate the effect of eculizumab on perceived fatigue in patients with anti-
acetylcholine receptor antibody-positive, refractory, generalized myasthenia gravis (MG) …

Protocol of a prospective multicenter study on comorbidity impact on multiple sclerosis and antibody-mediated diseases of the central nervous system (COMMIT)

S Samadzadeh, R Adnan, P Berglova… - Frontiers in …, 2024 - frontiersin.org
Comorbidities in patients with multiple sclerosis (MS) and antibody-mediated diseases of the
central nervous system (CNS) including neuromyelitis optica spectrum disorder (NMOSD) …

[HTML][HTML] Perceived stigma in adults with epilepsy in Sweden and associations with country of birth, socioeconomic status, and mental health

K Andersson, A Ozanne, J Zelano, K Malmgren… - Epilepsy & Behavior, 2022 - Elsevier
Background Stigma contributes to negative health outcomes and amplifies health disparities
in epilepsy. This study aimed to investigate associations of perceived stigma with the country …

Patient-reported outcome measures for patients with diabetes mellitus associated with foot and ankle pathologies: a systematic review

AB Ortega-Avila, P Cervera-Garvi… - Journal of Clinical …, 2019 - mdpi.com
Background: Diabetes mellitus (DM) is a chronic and complex disease, which is a major
cause of morbidity and mortality and affects all age groups. It commonly produces secondary …