[HTML][HTML] Advance care planning for people living with dementia: an umbrella review of effectiveness and experiences

A Wendrich-van Dael, F Bunn, J Lynch… - International journal of …, 2020 - Elsevier
Background End of life care is often inadequate for people with dementia. Advanced care
planning (ACP) has the potential to improve outcomes for people with dementia. The aim of …

Advance care planning in dementia: recommendations for healthcare professionals

K Harrison Dening, EL Sampson… - … Care: Research and …, 2019 - journals.sagepub.com
The process of advance care planning in dementia is far from straightforward; as dementia
progresses, the ability to consider future thoughts and actions becomes compromised, thus …

[HTML][HTML] Publicly available, interactive web-based tools to support advance care planning: systematic review

C Dupont, T Smets, F Monnet, L Pivodic… - Journal of medical …, 2022 - jmir.org
Background There is an increasing number of interactive web-based advance care planning
(ACP) support tools, which are web-based aids in any format encouraging reflection …

A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is …

R Van Rickstal, AD Vleminck… - Palliative …, 2022 - journals.sagepub.com
Background: Broad consensus exists on the relevance of advance care planning in
dementia. Although people with young-onset dementia and their family are hypothesized to …

What do relatives value most in end-of-life care for people with dementia?

S Bolt, J van der Steen, J Schols… - … journal of palliative …, 2019 - magonlinelibrary.com
Background: End-of-life care for older people with dementia is often sub-optimal.
Understanding the experiences of the relatives involved in the care of the person with …

Advance care planning information intervention for persons with mild dementia and their family caregivers: Impact on end-of-life care decision conflicts

HL Huang, WR Lu, CL Liu, HJ Chang - PloS one, 2020 - journals.plos.org
Persons with dementia are at high risk for loss of decision-making ability due to increased
cognitive decline as the disease progresses. Participation in advance care planning (ACP) …

Views of people living with dementia and their carers on their present and future: a qualitative study

D Nimmons, J Manthorpe, E West, G Rait… - BMC Palliative Care, 2023 - Springer
Background Dementia leads to multiple issues including difficulty in communication and
increased need for care and support. Discussions about the future often happen late or …

Age-appropriate advance care planning in children diagnosed with a life-limiting condition: a systematic review

J Brunetta, J Fahner, M Legemaat, E van den Bergh… - Children, 2022 - mdpi.com
Pediatric advance care planning (pACP) is an important strategy to support patient-centered
care. It is known to be difficult, yet paramount, to involve the child in pACP while adjusting …

US clinicians' perspectives on advance care planning for persons with dementia: A qualitative study

J Tjia, N D'Arcangelo, D Carlston… - Journal of the …, 2023 - Wiley Online Library
Background Although advance care planning (ACP) for persons with dementia (PWD) can
promote patient‐centered care by aligning future healthcare with patient values, few PWD …

Are care staff equipped for end-of-life communication? A cross-sectional study in long-term care facilities to identify determinants of self-efficacy

K Evenblij, M Ten Koppel, T Smets… - BMC palliative …, 2019 - Springer
Background End-of-life conversations are rarely initiated by care staff in long-term care
facilities. A possible explanation is care staff's lack of self-efficacy in such conversations …