[HTML][HTML] The Aortic Dissection Collaborative: Methods for building capacity for patient-centered outcomes research in the aortic dissection community

JR Lee, SO Lawrence, M Soto, M Case, N Cotter… - Seminars in Vascular …, 2022 - Elsevier
Understanding what matters most to patients can help guide research in a direction that is
best situated to provide evidence that is responsive to their core concerns. This can better …

Engaging patients and caregivers in establishing research priorities for aortic dissection

S Acosta, C Kumlien, A Forsberg… - SAGE Open …, 2019 - journals.sagepub.com
Objectives: The aim of this study was to establish the top 10 research uncertainties in aortic
dissection together with the patient organization Aortic Dissection Association Scandinavia …

[HTML][HTML] Current state and future directions of genomic medicine in aortic dissection: a path to prevention and personalized care

AC Cecchi, M Drake, C Campos, J Howitt… - Seminars in vascular …, 2022 - Elsevier
Aortic dissection confers high mortality and morbidity rates despite advances in treatment,
impacts quality of life, and contributes immense burden to the healthcare system globally …

[HTML][HTML] Stakeholder perspectives on education in aortic dissection

SD Talutis, J Watson, E Goldsborough III… - Seminars in Vascular …, 2022 - Elsevier
ABSTRACT The Aortic Dissection Collaborative was established to evaluate patient-
centered research priorities in aortic dissection (AD). Education was identified as a topic of …

Are we there yet? Emerging milestones in aortic dissection care

LG Svensson - Journal of the American Heart Association, 2019 - Am Heart Assoc
Are We There Yet? Emerging Milestones in Aortic Dissection Care | Journal of the American
Heart Association Science Volunteer Warning signs SearchSearch Advanced Search Donate …

[HTML][HTML] Perceived need for psychosocial support after aortic dissection: cross-sectional survey

G Meinlschmidt, D Berdajs, R Moser-Starck… - Journal of participatory …, 2020 - jopm.jmir.org
Background The gold standard management of aortic dissection, a life-threatening
condition, includes multidisciplinary approaches. Although mental distress following aortic …

[HTML][HTML] Lived experiences of people with or at risk for aortic dissection: a qualitative assessment

JR Lee, C Segal, J Howitt, M Case, N Cotter… - Seminars in Vascular …, 2022 - Elsevier
Aortic dissection (AD) is a life-changing event that is often accompanied by a loss of normal
quality of life. Survivors of AD go on to have a chronic disease that requires lifestyle …

[HTML][HTML] Innovative postmarket device evaluation using a quality registry to monitor thoracic endovascular aortic repair in the treatment of aortic dissection

AW Beck, JV Lombardi, DB Abel, JP Morales… - Journal of vascular …, 2017 - Elsevier
Abstract Objective United States Food and Drug Administration (FDA)-mandated
postapproval studies have long been a mainstay of the continued evaluation of high-risk …

Epidemiology of aortic dissection

I Sen, YM Erben, C Franco-Mesa… - Seminars in vascular …, 2021 - Elsevier
Aortic dissection remains a highly morbid diagnosis. The treatment of aortic dissection has
undergone several paradigm shifts since it was first understood. However, despite the robust …

What Really Matters to Survivors of Acute Type A Aortic Dissection—A Survey of Patient-Reported Outcomes in the Dutch National Aortic Dissection Advocacy Group

JS Breel, ES de Klerk, M Strypet, F de Heer… - Journal of clinical …, 2023 - mdpi.com
(1) Background: Type A acute aortic dissection (TAAAD) almost always requires emergency
surgery, and postoperative complications are common. Quality assurance systems tend to …