[HTML][HTML] The Aortic Dissection Collaborative: Methods for building capacity for patient-centered outcomes research in the aortic dissection community
JR Lee, SO Lawrence, M Soto, M Case, N Cotter… - Seminars in Vascular …, 2022 - Elsevier
Understanding what matters most to patients can help guide research in a direction that is
best situated to provide evidence that is responsive to their core concerns. This can better …
best situated to provide evidence that is responsive to their core concerns. This can better …
Engaging patients and caregivers in establishing research priorities for aortic dissection
S Acosta, C Kumlien, A Forsberg… - SAGE Open …, 2019 - journals.sagepub.com
Objectives: The aim of this study was to establish the top 10 research uncertainties in aortic
dissection together with the patient organization Aortic Dissection Association Scandinavia …
dissection together with the patient organization Aortic Dissection Association Scandinavia …
[HTML][HTML] Current state and future directions of genomic medicine in aortic dissection: a path to prevention and personalized care
Aortic dissection confers high mortality and morbidity rates despite advances in treatment,
impacts quality of life, and contributes immense burden to the healthcare system globally …
impacts quality of life, and contributes immense burden to the healthcare system globally …
[HTML][HTML] Stakeholder perspectives on education in aortic dissection
SD Talutis, J Watson, E Goldsborough III… - Seminars in Vascular …, 2022 - Elsevier
ABSTRACT The Aortic Dissection Collaborative was established to evaluate patient-
centered research priorities in aortic dissection (AD). Education was identified as a topic of …
centered research priorities in aortic dissection (AD). Education was identified as a topic of …
Are we there yet? Emerging milestones in aortic dissection care
LG Svensson - Journal of the American Heart Association, 2019 - Am Heart Assoc
Are We There Yet? Emerging Milestones in Aortic Dissection Care | Journal of the American
Heart Association Science Volunteer Warning signs SearchSearch Advanced Search Donate …
Heart Association Science Volunteer Warning signs SearchSearch Advanced Search Donate …
[HTML][HTML] Perceived need for psychosocial support after aortic dissection: cross-sectional survey
G Meinlschmidt, D Berdajs, R Moser-Starck… - Journal of participatory …, 2020 - jopm.jmir.org
Background The gold standard management of aortic dissection, a life-threatening
condition, includes multidisciplinary approaches. Although mental distress following aortic …
condition, includes multidisciplinary approaches. Although mental distress following aortic …
[HTML][HTML] Lived experiences of people with or at risk for aortic dissection: a qualitative assessment
JR Lee, C Segal, J Howitt, M Case, N Cotter… - Seminars in Vascular …, 2022 - Elsevier
Aortic dissection (AD) is a life-changing event that is often accompanied by a loss of normal
quality of life. Survivors of AD go on to have a chronic disease that requires lifestyle …
quality of life. Survivors of AD go on to have a chronic disease that requires lifestyle …
[HTML][HTML] Innovative postmarket device evaluation using a quality registry to monitor thoracic endovascular aortic repair in the treatment of aortic dissection
AW Beck, JV Lombardi, DB Abel, JP Morales… - Journal of vascular …, 2017 - Elsevier
Abstract Objective United States Food and Drug Administration (FDA)-mandated
postapproval studies have long been a mainstay of the continued evaluation of high-risk …
postapproval studies have long been a mainstay of the continued evaluation of high-risk …
Epidemiology of aortic dissection
Aortic dissection remains a highly morbid diagnosis. The treatment of aortic dissection has
undergone several paradigm shifts since it was first understood. However, despite the robust …
undergone several paradigm shifts since it was first understood. However, despite the robust …
What Really Matters to Survivors of Acute Type A Aortic Dissection—A Survey of Patient-Reported Outcomes in the Dutch National Aortic Dissection Advocacy Group
JS Breel, ES de Klerk, M Strypet, F de Heer… - Journal of clinical …, 2023 - mdpi.com
(1) Background: Type A acute aortic dissection (TAAAD) almost always requires emergency
surgery, and postoperative complications are common. Quality assurance systems tend to …
surgery, and postoperative complications are common. Quality assurance systems tend to …
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