Self-and informant-rated apathy in patients with childhood-onset craniopharyngioma

A Mehren, J Özyurt, P Zu Klampen, S Boekhoff… - Journal of neuro …, 2018 - Springer
Introduction The current study aimed to assess whether childhood-onset craniopharyngioma
patients suffer from symptoms of apathy, as assessed by patients themselves and their close …

Prevalence, associations, and predictors of apathy in adult survivors of infantile (< 5 years of age) posterior fossa brain tumors

C Carroll, P Watson, HA Spoudeas… - Neuro …, 2013 - academic.oup.com
Background Apathy is associated with pervasive and disadvantageous effects on daily
functioning. It has been observed transiently in some children after surgery for posterior …

Pituitary disorders as a predictor of apathy and executive dysfunction in adult survivors of childhood brain tumors

ME Fox, TZ King - Pediatric blood & cancer, 2016 - Wiley Online Library
Background The relationship between apathy and endocrine dysfunction, both frequent
outcomes of neurological insult, has not yet been investigated in brain tumor survivors. The …

Awareness of psychological and relationship problems amongst brain tumour patients and its association with carer distress

HE Andrewes, KJ Drummond, M Rosenthal… - Psycho …, 2013 - Wiley Online Library
Objective The aim of this research was to investigate if brain tumour patients underestimate
the severity of their impairments and the impact of this behaviour on carer distress. This …

Psychological well‐being and independent living of young adults with childhood‐onset craniopharyngioma

RM Memmesheimer, K Lange, M Dölle… - … Medicine & Child …, 2017 - Wiley Online Library
Aim To assess the psychological well‐being and social integration of adults with
craniopharyngioma diagnosed in childhood. Method A cross‐sectional study of a nationwide …

Predicting parental distress among children newly diagnosed with craniopharyngioma

RK Peterson, JM Ashford, SM Scott… - Pediatric blood & …, 2018 - Wiley Online Library
Background Childhood brain tumor diagnoses are stressful for families. Children diagnosed
with craniopharyngioma (Cp) present with particularly challenging medical and cognitive …

Vision-related quality of life in patients with childhood-onset craniopharyngioma

P Sowithayasakul, J Beckhaus, S Boekhoff… - Scientific Reports, 2023 - nature.com
Quality of life (QoL) is a critical component of aftercare in survivors of childhood-onset
craniopharyngioma (CP). Visual impairment adversely affects QoL after CP. This study …

Emotional concerns and coping strategies in low grade glioma patients and reliability of their caregivers in reporting these concerns: findings from a cross-sectional …

R Moreale, F Campanella, F Marin, M Skrap… - European Journal of …, 2017 - Elsevier
Purpose To explore the emotional concerns and coping strategies of patients with Low
Grade Glioma (LGG) and whether or not their caregivers are reliable in reporting these …

Cognitive complaints in brain tumor patients and their relatives' perspectives

IK Gosselt, VPM Scheepers, LA Spreij… - Neuro-oncology …, 2021 - academic.oup.com
Background Cognitive deficits have been frequently assessed in brain tumor patients.
However, self-reported cognitive complaints have received little attention so far. Cognitive …

Parent–child communication and psychological adjustment in children with a brain tumor

A Adduci, M Jankovic, S Strazzer… - Pediatric blood & …, 2012 - Wiley Online Library
Background Internalizing problems, anxiety, depression, withdrawal, and consequent social
problems are frequently observed in children with brain tumors. The objective of this work is …