Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden
onset, a rapid progression, a profile of complex disabilities and fatal consequences. Caring …

Objectives: to explore the experiences of people with Motor Neurone Disease (MND),
current and bereaved carers in the final stages of the disease and bereavement period …

Background Increasingly, people with neurodegenerative illness are cared for at home until
close to death. Yet, discussing the reality of dying remains a social taboo. Objective To …

Background: There is growing awareness that different terminal diseases translate into
different family caregiver experiences, and the palliative and supportive care needs of these …

Background: Despite being a terminal neurodegenerative disease, the role of palliative care
is less recognised for motor neurone disease than for other life-limiting conditions …

Background Motor neurone disease (MND) is a progressive neurological disease causing
muscle wasting, gradual paralysis, respiratory failure. MND care is demanding, complex and …

Background: Interviews with bereaved family carers to examine the end-of-life experience of
the deceased are important tools for palliative care researchers, but the ethics of …

Background Despite the traumatic and fatal nature of motor neurone disease (MND) and the
caring experiences being described as unrelenting, little is known about risk of psychiatric …

Aim: To identify and compare the needs for supportive care/palliative care services of people
in Australia with Motor Neuron Disease (MND), Multiple Sclerosis (MS), Huntington's …

Progress in medical technology and treatment has resulted in more people with
neurodegenerative conditions surviving for longer periods of time. This increased lifespan …