Participatory research, people with intellectual disabilities and ethical approval: making reasonable adjustments to enable participation

R Northway, J Howarth, L Evans - Journal of clinical nursing, 2015 - Wiley Online Library
Aims and objectives The aim of this paper is to explore how making reasonable adjustments
to the process of securing ethical approval for research can facilitate the meaningful …

Ethical challenges in intellectual disability research

O Doody - Mathews Journal of Nursing and Health Care, 2018 - mathewsopenaccess.com
Involving individuals with intellectual disability in research can be difficult, researchers often
focus on those with a mild/moderate disability as they are often more accessible. However …

Research participation by people with intellectual disability and mental health issues: An examination of the processes of consent

C Taua, C Neville, J Hepworth - International Journal of Mental …, 2014 - Wiley Online Library
Balancing the demands of research and ethics is always challenging, and even more so
when recruiting vulnerable groups. Within the context of current legislation and international …

Nurses' representations of caring for intellectually disabled patients and perceived needs to ensure quality care

A Ndengeyingoma, J Ruel - Journal of Clinical Nursing, 2016 - Wiley Online Library
Aims and objectives To explore nurses' representations of caring for people with an
intellectual disability, intervention strategies they currently use, and to identify needs to …

Including adults with intellectual disabilities who lack capacity to consent in research

J Calveley - Nursing Ethics, 2012 - journals.sagepub.com
The Mental Capacity Act 2005 has stipulated that in England and Wales the ethical
implications of carrying out research with people who are unable to consent must be …

Ethical considerations in qualitative case study research recruiting participants with profound intellectual disabilities

D Haines - Research Ethics, 2017 - journals.sagepub.com
Drawing on the author's experience carrying out qualitative research in the field of
occupational therapy with people with intellectual disabilities, this article explores ethical …

Ethical challenges and complexities of including people with intellectual disability as participants in research

T Iacono - Journal of Intellectual and Developmental Disability, 2006 - Taylor & Francis
Knowingly or not, every researcher submitting a proposal to a research ethics committee
does so in the shadow of the Willowbrook study and other similarly infamous experiments …

In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other

M Walsh, V Stead, SM Sawyer… - International …, 2024 - journals.sagepub.com
Across disciplines, qualitative researchers have documented epistemological and practical
tensions in the ethical review of community-based and participatory research, with many …

Ethical challenges and complexities of including vulnerable people in research: Some pre‐theoretical considerations

P Ramcharan - Journal of Intellectual and Developmental Disability, 2006 - Taylor & Francis
If equality is one important measure of the priority of research, then there should be more
research among those who are vulnerable and/or disadvantaged. However, the more …

A nurses' ethical commitment to people with intellectual and developmental disabilities

K Fisher, C Robichaux, J Sauerland… - Nursing ethics, 2020 - journals.sagepub.com
Aim: This article explores the issues of knowledge deficits of healthcare professionals in
meeting the needs of people with IDD throughout the life span, and to identify factors that …