Background Many aspects of our lives are now digitized and connected to the internet. As a
result, individuals are now creating and collecting more personal data than ever before. This …

Research on large shared medical datasets and data-driven research are gaining fast
momentum and provide major opportunities for improving health systems as well as …

Citizen science has proved to be a unique and effective tool in helping science and society
cope with the ever-growing data rates and volumes that characterize the modern research …

Socio-technical systems that enable communication between “smart” networked devices
create a suite of new vulnerabilities for individual users and for society, the precise character …

This study identifies and explores evolving concepts of trust and privacy in the context of
user-generated health data. We define “user-generated health data” as data captured …

Why should big data be the purview of only national governments, corporations, and
(sometimes) academics? Many Web communications and other electronic traces are made …

Summary The All of Us Research Program seeks to engage at least one million diverse
participants to advance precision medicine and improve human health. We describe here …

Abstract Information is increasingly digital, creating opportunities to respond to pressing
issues about human populations using linked datasets that are large, complex, and diverse …

Health data have enormous potential to transform healthcare, health service design,
research, and individual health management. However, health data collected by institutions …

The Internet has forever changed the way people access information and make decisions
about their healthcare needs. Patients now share information about their health at …