[HTML][HTML] Parents' experiences of pediatric palliative care and the impact on long-term parental grief

IMM Van der Geest, ASE Darlington, IC Streng… - Journal of pain and …, 2014 - Elsevier
Context Approximately 25% of children diagnosed with cancer eventually die. Losing a child
puts parents at increased risk for developing psychological problems. Objectives To explore …

Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes

UC Kreicbergs, P Lannen, E Onelov… - Journal of clinical …, 2007 - ascopubs.org
Purpose It is still uncertain whether or not parents can ever come to terms with the loss of a
child and whether professional or social support facilitate the long-term grief process …

Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support

J Snaman, SE Morris, AR Rosenberg, R Holder… - Supportive Care in …, 2020 - Springer
Purpose Parents of children that die from cancer are at increased risk of significant long-term
psychosocial and physical morbidities. Less, however, is known about the experience of …

Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective

A Bronsema, T Theißen, K Oechsle, J Wikert… - BMC palliative …, 2022 - Springer
Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …

Parental grief following the death of a child from cancer: the ongoing odyssey

JM Snaman, EC Kaye, C Torres… - Pediatric blood & …, 2016 - Wiley Online Library
Background The death of a child is a devastating event that results in profound grief and
significant psychosocial and physical morbidities in parents. The parental grief journey is a …

Listening to parents: The role of symptom perception in pediatric palliative home care

R Vollenbroich, GD Borasio, A Duroux… - … & supportive care, 2016 - cambridge.org
Objective: This study analyzes symptom perception by parents and healthcare professionals
and the quality of symptom management in a pediatric palliative home care setting and …

Prevalence and predictors of parental grief and depression after the death of a child from cancer

MC McCarthy, NE Clarke, CL Ting… - Journal of palliative …, 2010 - liebertpub.com
Purpose: To investigate patterns of grief and depression in a sample of parents whose child
had died of cancer, and to examine factors related to burden of illness and end-of-life care …

Experiences and needs of parents of palliative paediatric oncology patients: A meta‐synthesis

AJN Tan, LH Tiew, S Shorey - European journal of cancer care, 2021 - Wiley Online Library
Introduction Despite palliative care being offered to paediatric cancer patients, it has limited
utilisation and often excludes parental support. Therefore, this review aims to consolidate …

Experiences at the end of life from the perspective of bereaved parents: Results of a qualitative focus group study

LK Sedig, JL Spruit, TK Paul… - American Journal of …, 2020 - journals.sagepub.com
Background: Palliative care principles are known to support the experiences of children and
their families throughout the illness trajectory. However, there is little knowledge of the …

Parental experiences with a hospital-based bereavement program following the loss of a child to cancer

J Berrett-Abebe, E Levin-Russman… - … & supportive care, 2017 - cambridge.org
Objective: The death of a child from cancer is an intense and life-changing loss for a parent.
Guided by the principles of patient-and family-centered care, hospital-based caregivers …