The end of life and the family: hospice patients' views on dying as relational

A Broom, E Kirby - Sociology of health & illness, 2013 - Wiley Online Library
The end of life is a highly emotive and critical period in the life course and families often play
a central role during this time. Despite significant sociological work on dying as a relational …

Understanding family responses to life-limiting illness: in-depth interviews with hospice patients and their family members

DP Waldrop, RA Milch… - Journal of palliative care, 2005 - journals.sagepub.com
Understanding family dynamics is a key component in providing comprehensive care for
persons with progressive illnesses and their caregivers. The purpose of this study was to …

Socio-cultural contexts of end-of-life conversations and decisions: bereaved family cancer caregivers' retrospective co-constructions

JN Githaiga, L Swartz - BMC Palliative Care, 2017 - Springer
Background End-of-life communication becomes increasingly difficult in terminal cancer,
which inevitably entails conversations around dying and death. In resource-limited areas …

Relationships with death: The terminally ill talk about dying

K Wright - Journal of marital and family therapy, 2003 - Wiley Online Library
This article describes a qualitative study exploring the experiences of terminally ill patients
and their families as they lived with the inevitability of death. Frustrated by the dominant …

Experiences at the end of life from the perspective of bereaved parents: Results of a qualitative focus group study

LK Sedig, JL Spruit, TK Paul… - American Journal of …, 2020 - journals.sagepub.com
Background: Palliative care principles are known to support the experiences of children and
their families throughout the illness trajectory. However, there is little knowledge of the …

At the crossroads: making the transition to hospice

D Schulman-Green, R McCORKLE, L Curry… - Palliative & Supportive …, 2004 - cambridge.org
Objective: Previous studies reveal that many terminally ill patients never receive hospice
care. Among those who do receive hospice, many enroll very close to the time of death …

'We don't want to go and be idle ducks': Family practices at the end of life

E Borgstrom, J Ellis, K Woodthorpe - Sociology, 2019 - journals.sagepub.com
At present, end-of-life research, policy and practice typically prioritise the dying individual
and consider the family an orbiting static unit. Sociological theorising of dying has reflected …

Towards better support for family carers: a richer understanding

S Payne, G Grande - Palliative Medicine, 2013 - journals.sagepub.com
This special edition of Palliative Medicine aims to address the important topic of how best to
support lay people (family, friends and significant others; hereafter called 'family carers') who …

Bereaved carers' accounts of the end of life and the role of care providers in a 'good death': a qualitative study

LM Holdsworth - Palliative medicine, 2015 - journals.sagepub.com
Background: The way that people die is particularly important to those who are left behind
and this memory is not limited to the moment of death, but encompasses the entire end-of …

The changing nature of guilt in family caregivers: Living through care transitions of parents at the end of life

K Martz, JM Morse - Qualitative health research, 2017 - journals.sagepub.com
Older adults cared for at home by family members at the end of life are at risk for care
transitions to residential and institutional care settings. These transitions are emotionally …