… changing diapers: stress and decision-making among parents of girls with congenital adrenal hyperplasia seeking consultation about feminizing genital restoration …

KM Szymanski, AK Salama, B Whittam, H Frady… - Journal of pediatric …, 2019 - Elsevier
parents of girls with CAH, parents reported concerns about surgical decision-making to be
the least stressful … This mirrors the authors' previous work on parental future concerns, where …

Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH

RS Fisher, HC Espeleta, LS Baskin… - Journal of pediatric …, 2022 - Elsevier
… Classic congenital adrenal hyperplasia (CAH) due to 21-… has assumed genital surgery
as the primary decision-making … and stress reduction techniques [25]. Thus, provider-initiated …

What do patients and parents say about parents' ability to choose early genital surgery for girls with congenital adrenal hyperplasia?

KM Szymanski, LH Braga, B Whittam… - The Journal of …, 2021 - auajournals.org
seek laws to ban all genital surgery in children born with atypical … on genital surgery in
childhood among CAH females and … decision making by parents on behalf of their child would be …

A survey of healthcare professionals' perceptions of the decisional needs of parents with an infant born with a disorder/difference of sex development

KI Suorsa-Johnson, MD Gardner, W Brinkman… - Journal of Pediatric …, 2023 - Elsevier
… ) perceptions of parental decision-making needs when an … classic 21-hydroxylase congenital
adrenal hyperplasia (CAH) … , and whether to pursue genetic testing beyond karyotype, ie, …

Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex

KM Szymanski, RC Rink, B Whittam, DJ Hensel… - Journal of Pediatric …, 2021 - Elsevier
… with respect to laws about childhood genital surgery. We also sought to explore reasons for
… care for patients and families affected by classical congenital adrenal hyperplasia due to 21-…

How the Birth of a Girl Child with Congenital Adrenal Hyperplasia Changed the Mother's Life: A Case Study

P Verma, S Sharma, D Dayal… - Nursing & Midwifery …, 2023 - journals.sagepub.com
… function of genitalia also adds to stress among the parents of … parents that in future feminine
genital reconstruction surgery … , management of symptoms, seeking and collaborating with …

An emerging ethical and medical dilemna: Should physicians perform sex assignment surgery on infants with ambiguous genitalia

HG Beh, M Diamond - Mich. J. Gender & L., 2000 - HeinOnline
… with regard to parental decision-making responsibilities for … Over the years, use has expanded
beyond high risk deliveries … ] or virilizing CAH [congenital adrenal hyperplasia] who have …

Evaluation of a nurse-led counselling intervention on selected outcome variables for parents of children with congenital adrenal hyperplasia

P Verma, S Sharma, S Kaur, L Rohilla… - Journal of Pediatric …, 2023 - degruyter.com
Beyond changing diapers: stress and decision-makingseeking consultation about
feminizing genital restoration surgery. J Pediatr Urol 2019;15:653–8.10.1016/j.jpurol.2019.09.022…

Treatment and outcome of congenital adrenal hyperplasia: current reconstructive surgery

RC Rink, B Whittam - Genetic Steroid Disorders, 2023 - Elsevier
… intervention, thus including the child in the decision-making … of a child with genital atypia is
stressful for the parents and need … -labioplasty (female genital restoration surgery) should be …

[PDF][PDF] Decision-Making and Implications of Genital Surgery in Intersex Individuals in the Arab World: A Case Series

MD Alfred Chabbouh, MD Rim Chehab… - scholar.archive.org
… ), monogenic mutations (eg congenital adrenal hyperplasia), or … of these intersex children
suffered notable psychological stress… view beyond clinical diagnoses and medical and surgical