… changing diapers: stress and decision-making among parents of girls with congenital adrenal hyperplasia seeking consultation about feminizing genital restoration …
KM Szymanski, AK Salama, B Whittam, H Frady… - Journal of pediatric …, 2019 - Elsevier
… parents of girls with CAH, parents reported concerns about surgical decision-making to be
the least stressful … This mirrors the authors' previous work on parental future concerns, where …
the least stressful … This mirrors the authors' previous work on parental future concerns, where …
Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH
RS Fisher, HC Espeleta, LS Baskin… - Journal of pediatric …, 2022 - Elsevier
… Classic congenital adrenal hyperplasia (CAH) due to 21-… has assumed genital surgery
as the primary decision-making … and stress reduction techniques [25]. Thus, provider-initiated …
as the primary decision-making … and stress reduction techniques [25]. Thus, provider-initiated …
What do patients and parents say about parents' ability to choose early genital surgery for girls with congenital adrenal hyperplasia?
KM Szymanski, LH Braga, B Whittam… - The Journal of …, 2021 - auajournals.org
… seek laws to ban all genital surgery in children born with atypical … on genital surgery in
childhood among CAH females and … decision making by parents on behalf of their child would be …
childhood among CAH females and … decision making by parents on behalf of their child would be …
A survey of healthcare professionals' perceptions of the decisional needs of parents with an infant born with a disorder/difference of sex development
KI Suorsa-Johnson, MD Gardner, W Brinkman… - Journal of Pediatric …, 2023 - Elsevier
… ) perceptions of parental decision-making needs when an … classic 21-hydroxylase congenital
adrenal hyperplasia (CAH) … , and whether to pursue genetic testing beyond karyotype, ie, …
adrenal hyperplasia (CAH) … , and whether to pursue genetic testing beyond karyotype, ie, …
Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex
… with respect to laws about childhood genital surgery. We also sought to explore reasons for
… care for patients and families affected by classical congenital adrenal hyperplasia due to 21-…
… care for patients and families affected by classical congenital adrenal hyperplasia due to 21-…
How the Birth of a Girl Child with Congenital Adrenal Hyperplasia Changed the Mother's Life: A Case Study
P Verma, S Sharma, D Dayal… - Nursing & Midwifery …, 2023 - journals.sagepub.com
… function of genitalia also adds to stress among the parents of … parents that in future feminine
genital reconstruction surgery … , management of symptoms, seeking and collaborating with …
genital reconstruction surgery … , management of symptoms, seeking and collaborating with …
An emerging ethical and medical dilemna: Should physicians perform sex assignment surgery on infants with ambiguous genitalia
… with regard to parental decision-making responsibilities for … Over the years, use has expanded
beyond high risk deliveries … ] or virilizing CAH [congenital adrenal hyperplasia] who have …
beyond high risk deliveries … ] or virilizing CAH [congenital adrenal hyperplasia] who have …
Evaluation of a nurse-led counselling intervention on selected outcome variables for parents of children with congenital adrenal hyperplasia
P Verma, S Sharma, S Kaur, L Rohilla… - Journal of Pediatric …, 2023 - degruyter.com
… Beyond changing diapers: stress and decision-making … seeking consultation about
feminizing genital restoration surgery. J Pediatr Urol 2019;15:653–8.10.1016/j.jpurol.2019.09.022…
feminizing genital restoration surgery. J Pediatr Urol 2019;15:653–8.10.1016/j.jpurol.2019.09.022…
Treatment and outcome of congenital adrenal hyperplasia: current reconstructive surgery
RC Rink, B Whittam - Genetic Steroid Disorders, 2023 - Elsevier
… intervention, thus including the child in the decision-making … of a child with genital atypia is
stressful for the parents and need … -labioplasty (female genital restoration surgery) should be …
stressful for the parents and need … -labioplasty (female genital restoration surgery) should be …
[PDF][PDF] Decision-Making and Implications of Genital Surgery in Intersex Individuals in the Arab World: A Case Series
MD Alfred Chabbouh, MD Rim Chehab… - scholar.archive.org
… ), monogenic mutations (eg congenital adrenal hyperplasia), or … of these intersex children
suffered notable psychological stress… view beyond clinical diagnoses and medical and surgical …
suffered notable psychological stress… view beyond clinical diagnoses and medical and surgical …