Genetic research and aboriginal and torres strait Islander Australians

E Kowal, G Pearson, CS Peacock, SE Jamieson… - Journal of Bioethical …, 2012 - Springer
… the ethical issues relevant to genetic research in Indigenous populations and considers …
negotiated in a genomic research project currently under way in a remote Aboriginal community. …

Genomics in research and health care with Aboriginal and Torres Strait Islander peoples

R McWhirter, D Nicol, J Savulescu - Monash Bioethics Review, 2015 - Springer
… Further, at present it is standard practice for genetic research with Aboriginal and Torres
Strait Islander communities not to share genomic data with other researchers, in an effort to …

[HTML][HTML] Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people

J Luke, P Dalach, L Tuer, R Savarirayan… - Nature …, 2022 - nature.com
… factors, the aim of this research is to investigate access to clinical genetic health services by
… among Aboriginal and/or Torres Strait Islander people in three Australian jurisdictions: the …

Australian Aboriginal and Torres Strait Islander collections of genetic heritage: the legal, ethical and practical considerations of a dynamic consent approach to …

M Prictor, S Huebner, HJA Teare… - The Journal of Law …, 2020 - journals.sagepub.com
Australia in genetic and genomic research, and the increasing number of invitations from
researchers to … Such collections, their legal status, and their future use in genomic research are …

Ask the people: developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples

S Kaladharan, ME Vidgen, JV Pearson… - BMJ Global …, 2021 - gh.bmj.com
… of genomic research projects in partnership with Aboriginal and Torres Strait Islander peoples.
A … with cultural and community expectations for research. We developed the guidelines …

The practice of engaging aboriginal and Torres Strait islander communities in genome research

S Huebner, A Hermes, S Easteal - … research ethics: Claiming research …, 2020 - emerald.com
… that for Aboriginal and Torres Strait Islanders are self-… First Peoples research and bioethics
in Australia. Fundamental to … in genome research and keeping central to this research, trusted …

Genetic research: what does this mean for Indigenous Australian communities?

S van Hoist Pellekaan - Australian Aboriginal Studies, 2000 - search.informit.org
Analysis suggests a distinction between northern and … from populations which entered
Australia at different times. With … been concerned with local family genetic history. The sharing of …

[HTML][HTML] … boy's health! Talk straight to me!” perspectives on accessible and culturally safe care among Aboriginal and Torres Strait Islander patients of clinical genetics …

P Dalach, R Savarirayan, G Baynam… - International Journal for …, 2021 - Springer
… of this study highlight barriers to Aboriginal and Torres Strait Islander peoples’ participation
in clinical genetic … the representation of Aboriginal and Torres Strait Islander people at these …

[PDF][PDF] Genetic research in Indigenous health: significant progress, substantial challenges

E Kowal - 2012 - mja.com.au
… on genetic research in Aboriginal and Torres Strait Islander communities in 2010 and 2011.At
these events, genetic researchersresearchers and community members, Aboriginal ethics …

[HTML][HTML] Rapid review of five years of Aboriginal and Torres Strait Islander health research in Australia–persisting under‐representation of urban populations

W Jennings, G Spurling, B Shannon, N Hayman… - Australian and New …, 2021 - Elsevier
… Our literature search, conducted on 24 January 2018, used the validated Lowitja Institute
Lit.search tool with settings to retrieve all Aboriginal and Torres Strait Islander health research