A qualitative analysis of identity and goals in patients with deformities: preparation for an evidence-based advocacy for a vulnerable population

VJ Tapia, DC Chang, M Ramirez… - Annals of Plastic …, 2013 - journals.lww.com
VJ Tapia, DC Chang, M Ramirez, A Gosman
Annals of Plastic Surgery, 2013•journals.lww.com
Methods This retrospective qualitative analysis is of applicant responses to an intake
questionnaire for Fresh Start Surgical Gifts, a charitable reconstructive surgery organization
serving children and adults with deformities. Five open-ended questions were analyzed and
grouped into 2 broad categories: Identity and Goals. Keywords were identified by an online
survey website and subjective judgment of the investigators. Keywords were then combined
into broader themes. Results Seventy respondents with a mean age of 24.79 (median 23) …
Methods
This retrospective qualitative analysis is of applicant responses to an intake questionnaire for Fresh Start Surgical Gifts, a charitable reconstructive surgery organization serving children and adults with deformities. Five open-ended questions were analyzed and grouped into 2 broad categories: Identity and Goals. Keywords were identified by an online survey website and subjective judgment of the investigators. Keywords were then combined into broader themes.
Results
Seventy respondents with a mean age of 24.79 (median 23) between 1992 and 2011 were analyzed. Social and professional issues were the most frequently occurring themes among Identity and Goals questions.
Conclusion
The current identity of patients with deformities centers on social aspects of their lives, rather than a career or profession, yet they do hold both professional and social aspirations. This research will guide the development of an objective tool to measure patient-reported impact and outcomes of reconstructive plastic surgery.
Lippincott Williams & Wilkins
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