Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

ME Smith, SC Sanderson, KB Brothers… - BMC Medical Research …, 2016 - Springer
Background As biobanks play an increasing role in the genomic research that will lead to
precision medicine, input from diverse and large populations of patients in a variety of health
care settings will be important in order to successfully carry out such studies. One important
topic is participants' views towards consent and data sharing, especially since the 2011
Advanced Notice of Proposed Rulemaking (ANPRM), and subsequently the 2015 Notice of
Proposed Rulemaking (NPRM) were issued by the Department of Health and Human …

[PDF][PDF] Conducting a large, multisite survey about patients' views on broad consent: challenges and solutions

SC Sanderson, KB Brothers, MF Myers, J McCormick… - researchgate.net
Background As biobanks play an increasing role in the genomic research that will lead to
precision medicine, input from diverse and large populations of patients in a variety of health
care settings will be important in order to successfully carry out such studies. One important
topic is participants' views towards consent and data sharing, especially since the
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