Oncology Clinicians' Perspectives on Online Patient Portal Use in Pediatric and Adolescent Cancer

BA Sisk, C Bereitschaft, M Enloe, G Schulz… - JCO Clinical Cancer …, 2023 - ascopubs.org
… in care and prepare cancer survivors for transition to … rapid release of results to the portal,
participants described how their teams adapted workflows. Some hospitals delayed release of …

Childhood cancer survivor care: development of the Passport for Care

DG Poplack, M Fordis, W Landier, S Bhatia… - … Clinical oncology, 2014 - nature.com
… cases to ensure alignment of the generated care plans with published guidelines. Pilot testing
… The survivor PFC portal will enable survivors to view, via a computer or mobile platform, …

[HTML][HTML] The Cancer Survivorship Program at the Abramson Cancer Center of the University of Pennsylvania

LA Jacobs - Journal of Cancer Survivorship, 2024 - Springer
… to adult survivors of pediatric cancers, as well as survivors of … prior to their follow-up
appointments via the patient portal. … However, in 2019, the revised COC standard 4.8 was …

Increasing rates of breast cancer and cardiac surveillance among high‐risk survivors of childhood Hodgkin lymphoma following a mailed, one‐page survivorship care …

KC Oeffinger, MM Hudson, AC Mertens… - Pediatric blood & …, 2011 - Wiley Online Library
… of cancer survivors by empowering them with the key information about their health risks.
Further, recognizing that most cancer survivors … in lay terms (survivor portal) or medical terms (…

Models of care for survivors of childhood cancer

DL Friedman, DR Freyer, GA Levitt - Pediatric blood & cancer, 2006 - Wiley Online Library
… To date, there do not exist uniformly effective long-term follow-up plans for childhood
cancer survivors, as evidenced by published research over the past decade that documents a …

Pulmonary complications in survivors of childhood and adolescent cancer: A report from the Childhood Cancer Survivor Study

AC Mertens, Y Yasui, Y Liu, M Stovall… - Cancer …, 2002 - Wiley Online Library
BACKGROUND The Childhood Cancer Survivor Study is a resource that was designed to
investigate long‐term effects among 5‐year survivors of childhood and adolescent …

Chronic disease in the Childhood Cancer Survivor Study cohort: a review of published findings

L Diller, EJ Chow, JG Gurney, MM Hudson… - … of clinical oncology, 2009 - ascopubs.org
… A primary objective of the Childhood Cancer Survivor Study (CCSS) is to characterize the
major chronic health conditions faced by childhood cancer survivors, and to determine the risk …

[HTML][HTML] American Society of Clinical Oncology statement: achieving high-quality cancer survivorship care

MS McCabe, S Bhatia, KC Oeffinger… - … of Clinical Oncology, 2013 - ncbi.nlm.nih.gov
… the high rates of survival in pediatric cancers and the likelihood of … Long-term follow-up of
pediatric cancer survivors has led to an … on cancer survivorship published in Journal of Clinical …

The British Childhood Cancer Survivor Study: Objectives, methods, population structure, response rates and initial descriptive information

MM Hawkins, ER Lancashire, DL Winter… - Pediatric blood & …, 2008 - Wiley Online Library
… -based cohort of childhood cancer survivors to have included investigation of a … of childhood
cancer or its treatment). The study should provide useful information for counselling survivors

Cancer informatics for cancer centers: Scientific drivers for informatics, data science, and care in pediatric, adolescent, and young adult cancer

AR Kerlavage, AC Kirchhoff, JM Guidry Auvil… - JCO clinical cancer …, 2021 - ascopubs.org
… These maps are released quarterly to the public for research. … The explore data feature on
the portal allows users to search … growing population of childhood cancer survivors as well as …