The triple challenges associated with age‐related comorbidities in D own syndrome

EJ Glasson, DE Dye, AH Bittles - Journal of Intellectual …, 2014 - Wiley Online Library
EJ Glasson, DE Dye, AH Bittles
Journal of Intellectual Disability Research, 2014Wiley Online Library
Background Major increases in the survival of people with D own syndrome during the last
two generations have resulted in extended periods of adulthood requiring specialist care,
which in turn necessitates greater understanding of the nature, timing and impact of
comorbidities associated with the disorder. Method The prevalence of five comorbidities
reported as common in adults with D own syndrome, visual impairment, hearing impairment,
epilepsy, thyroid disorders and dementia was assessed by decade of life. Results From …
Background
Major increases in the survival of people with Down syndrome during the last two generations have resulted in extended periods of adulthood requiring specialist care, which in turn necessitates greater understanding of the nature, timing and impact of comorbidities associated with the disorder.
Method
The prevalence of five comorbidities reported as common in adults with Down syndrome, visual impairment, hearing impairment, epilepsy, thyroid disorders and dementia was assessed by decade of life.
Results
From early adulthood, people with Down syndrome are at enhanced risk of developing new comorbidities and they may present with multiple conditions. Three specific challenges are identified and discussed: are comorbidities detected in a timely manner, is the clinical progress of the disorder adequately understood, and who is responsible for the provision of care?
Conclusions
Further detailed investigations into the development and treatment of comorbidities across the lifespan are needed for a successful longitudinal approach to healthcare in people with Down syndrome. Implementation of this approach will better inform healthcare providers to ensure continuity of care with advancing age.
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