Walking the tightrope between study participant autonomy and researcher integrity: The case study of a research participant with Alzheimer's disease pursuing …
E Portacolone, KE Covinsky… - Journal of Empirical …, 2019 - journals.sagepub.com
This article addresses ethical issues in the conduct of ethnographic research with vulnerable
study participants, such as individuals with cognitive impairment. Seven ethical issues
emerged from this case study, in which a participant diagnosed with Alzheimer's disease
wished to pursue euthanasia in Switzerland:(a) How to protect the participant's autonomy
while ensuring his decision had not resulted from untreated depression or modifiable social
factors;(b) How to interpret self-harm;(c) How to protect the research team …
study participants, such as individuals with cognitive impairment. Seven ethical issues
emerged from this case study, in which a participant diagnosed with Alzheimer's disease
wished to pursue euthanasia in Switzerland:(a) How to protect the participant's autonomy
while ensuring his decision had not resulted from untreated depression or modifiable social
factors;(b) How to interpret self-harm;(c) How to protect the research team …
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