We surveyed genetics professionals, patients, and the public about rights to information, to
requested services, and to parenthood, posing difficult cases found in practice. In all, 2906 …

Methods 1 Anonymous questionnaires, covering a variety of ethical and social issues in
genetics, were mailed in 1994-96 to:- all persons certified by the American Board of Medical …

For several decades, clinical geneticists have espoused two key ethical principles,
nondirectiveness and confidentiality. These principles made a great deal of sense in the …

The international Human Genome Project (HGP) will rapidly make genetic information
available on a worldwide scale previously impossible to imagine. All adults have a right, if …

Autonomy is the primary ethical value in medicine in most Western countries. Many people
feel that they are entitled to whatever services they request, especially if they are willing to …

The family covenant proposed by Doukas and Berg (2001) is a welcome idea, for several
reasons. The issue of disclosure to family is one of the most ethically troubling in clinical …

There are proportionately fewer members of minority groups among genetics services
providers (including Master's level counselors) than in other US medical specialties …

A first step toward resolving ethical problems in medicine is to discover how clinicians
approach these prob-lems in practice. In a rapidly evolving specialty like medical genetics …

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social
issues in genetics in 18 nations. This book reports and discusses their second and more …

PREVIEW As genetic research opens the door to understanding inherited disorders and
disabilities, society is facing complex questions about ethical and legal issues. How can new …