[HTML][HTML] Caught in a no-win situation: discussions about CCSVI between persons with multiple sclerosis and their neurologists–a qualitative study
SM Driedger, R Maier, RA Marrie, M Brouwers - BMC neurology, 2017 - Springer
Background In recent years, shared decision making (SDM) has been promoted as a model
to guide interactions between persons with MS and their neurologists to reach mutually …
to guide interactions between persons with MS and their neurologists to reach mutually …
Navigating the “liberation procedure”: a qualitative study of motivating and hesitating factors among people with multiple sclerosis
M Ploughman, C Harris, SH Hogan… - Patient preference …, 2014 - Taylor & Francis
Background The debate within the multiple sclerosis (MS) community initiated by the chronic
cerebrospinal venous insufficiency (CCSVI) hypothesis and the subsequent liberation …
cerebrospinal venous insufficiency (CCSVI) hypothesis and the subsequent liberation …
[HTML][HTML] “I knew what was going to happen if I did nothing and so I was going to do something”: Faith, hope, and trust in the decisions of Canadians with multiple …
Background Chronic cerebrospinal venous insufficiency (CCSVI) treatment is an unproven
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
intervention aimed at relieving some of the symptoms of multiple sclerosis (MS). Despite …
Funding CCSVI research is/was a waste of valuable time, money and intellectual energy: yes
A Ghezzi - Multiple Sclerosis Journal, 2013 - journals.sagepub.com
In the case of CCSVI, all of these criteria are either not, or only partially, fulfilled: 5 a) the
discrepancy of results is against criterion 1; b) the lack of reproducibility against criterion 2 …
discrepancy of results is against criterion 1; b) the lack of reproducibility against criterion 2 …
[HTML][HTML] Insights for Healthcare Providers on Shared Decision-Making in Multiple Sclerosis: A Narrative Review
S Stoll, K Costello, SD Newsome, H Schmidt… - Neurology and …, 2024 - Springer
Shared decision-making (SDM) between the patient and their healthcare provider (HCP) in
developing treatment plans is increasingly recognized as central to improving treatment …
developing treatment plans is increasingly recognized as central to improving treatment …
[HTML][HTML] Media, politics and science policy: MS and evidence from the CCSVI trenches
D Pullman, A Zarzeczny, A Picard - BMC medical ethics, 2013 - Springer
Abstract Background In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
Medical tourism for CCSVI procedures in people with multiple sclerosis: an observational study
Background: Many Canadians with multiple sclerosis (MS) have recently travelled
internationally to have procedures for a putative condition called chronic cerebrospinal …
internationally to have procedures for a putative condition called chronic cerebrospinal …
CCSVI-A. A call to clinicans and scientists to vocalise in an Internet age
AR Gafson, G Giovannoni - Multiple Sclerosis and Related Disorders, 2014 - Elsevier
Abstract In 2008, Paulo Zamboni pioneered the 'liberation procedure'for treating multiple
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …
sclerosis (MS), claiming that MS is caused by an abnormality of venous drainage which he …
“I Will Respect the Autonomy of My Patient” A Scoping Review of Shared Decision Making in Multiple Sclerosis
AC Rahn, A Solari, H Beckerman… - … Journal of MS …, 2020 - meridian.allenpress.com
CME/CNE Information Activity Available Online: To access the article, post-test, and
evaluation online, go to http://www. cmscscholar. org. Target Audience: The target audience …
evaluation online, go to http://www. cmscscholar. org. Target Audience: The target audience …
[HTML][HTML] Shared decision-making in patients with multiple sclerosis
DT Ubbink, OC Damman, BA de Jong - Frontiers in Neurology, 2022 - frontiersin.org
Multiple sclerosis (MS) is a chronic and progressive neurological disorder impacting
physical, cognitive, and psychosocial health. The disease course, severity, and presence of …
physical, cognitive, and psychosocial health. The disease course, severity, and presence of …