The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

People have a powerful interest in geneticprivacy and its associated claim to ignorance, and
some equally powerful desires to beshielded from disturbing information are oftenvoiced …

This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …

In genetic medicine, a patient's diagnosis can mean their family members are also at risk,
raising a question about how consent and confidentiality should function in clinical genetics …

Genetic privacy and confidentiality have both intrinsic and consequential value. Although
general agreement exists about the need to protect privacy and confidentiality in the …

The phenomenon of the New Genetics raises complex social problems, particularly those of
privacy. This book offers ethical and legal perspectives on the questions of a right to know …

Medical research is increasingly becoming data-intensive; sensitive data are being re-used,
linked and analysed on an unprecedented scale. The current EU data protection law reform …

It is universally accepted in bioethics that doctors and other medical professionals have an
obligation to procure the informed consent of their patients. Informed consent is required …

The question of 'who owns genetic information 'is increasingly a focus of ethical inquiry.
Applied to predictive testing, several recent critiques suggest that persons with a genetic …

Until recently, genetics counselors and medical geneticists considered themselves lucky if
they could provide parents with predictive information about a small number of severe …