Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis

S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …

“Waiting for Science to Catch up with Practice”: an examination of 10-year YouTube trends in discussions of chronic cerebral spinal venous insufficiency treatment for …

SM Hynes, S Ghahari, SJ Forwell - Informatics for Health and …, 2019 - Taylor & Francis
Objective: The objective of this longitudinal study examined, first, whether people with
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …

[HTML][HTML] “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy

F Mazanderani, B O'Neill, J Powell - Patient education and counseling, 2013 - Elsevier
Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …

Patient-reported benefits of extracranial venous therapy: British Columbia CCSVI Registry

AD Sadovnick, IM Yee, K Attwell-Pope… - Canadian Journal of …, 2017 - cambridge.org
Objective Chronic cerebrospinal venous insufficiency (CCSVI) has been hypothesized to be
a risk factor for multiple sclerosis (MS). Venoplasty has been proposed as a treatment for …

Medical tourism for CCSVI procedures in people with multiple sclerosis: an observational study

LM Metz, J Greenfield, RA Marrie, N Jette… - Canadian Journal of …, 2016 - cambridge.org
Background: Many Canadians with multiple sclerosis (MS) have recently travelled
internationally to have procedures for a putative condition called chronic cerebrospinal …

Internet-based social networking and its role in the evolution of chronic cerebrospinal venous insufficiency

C Vera, A Herr, K Mandato, M Englander… - Techniques in vascular …, 2012 - Elsevier
The Internet is being seen as a growing resource for health-related information for a large
number of patients. It is undeniable that its widespread presence has led to the growth of …

Percutaneous transluminal angioplasty for treatment of chronic cerebrospinal venous insufficiency in people with multiple sclerosis: a summary of a Cochrane …

EJ van Zuuren, Z Fedorowicz, E Pucci… - Journal of Neurology …, 2014 - jnnp.bmj.com
Background It has been recently hypothesised that chronic cerebrospinal venous
insufficiency (CCSVI) may be an important factor in the pathogenesis of multiple sclerosis …

“Liberation treatment” for chronic cerebrospinal venous insufficiency in multiple sclerosis: the truth will set you free

G Tsivgoulis, S Faissner, K Voumvourakis… - Brain and …, 2015 - Wiley Online Library
Background Chronic cerebrospinal venous insufficiency (CCSVI) has recently been
introduced as a chronic state of impaired cerebral or cervical venous drainage that may be …

[HTML][HTML] Scientific versus experiential evidence: discourse analysis of the chronic cerebrospinal venous insufficiency debate in a multiple sclerosis forum

J Koschack, L Weibezahl, T Friede, W Himmel… - Journal of Medical …, 2015 - jmir.org
Background The vascular hypothesis of multiple sclerosis (MS), called chronic cerebrospinal
venous insufficiency (CCSVI), and its treatment (known as liberation therapy) was …

[HTML][HTML] Endovascular treatment for multiple sclerosis: The intersection of science, policy and the public

A Laupacis, AS Slutsky - Open Medicine, 2010 - ncbi.nlm.nih.gov
Abstract The Canadian Institutes of Health Research and the Multiple Sclerosis (MS) Society
of Canada recently convened an Invitational Panel to consider the scientific evidence linking …