Parent support/patient advocacy groups for rare genetic disorders have emerged as an
important force. They provide information, encourage research (both by participation in …

With genomic testing being increasingly integrated into every day clinical practice and a
wide range of practitioners ordering genetic tests, it is important that the scope of the genetic …

Voluntary, lay genetic support groups have become important providers of supportive,
educational, and social services for clients and families who face genetic disorders. A survey …

Genetic counselling is offered in diverse settings, and patient reactions vary due to
differences in personal, family and community beliefs, local healthcare settings, as well as …

Working in partnership with support services in the era of the “new genetics” Page 1 MJA Vol
178 19 May 2003 515 THE NEW GENETICS The Medical Journal of Australia ISSN …

Caregivers caring for a child with a genetic condition may experience psychosocial distress,
which may be compounded by the context in which the caring takes place. Few studies have …

For health care professionals (HCPs), patients and families alike, genetic advocacy groups
play an important role in dealing with genetic diseases and birth defects. The Genetic …

Genetic counseling for parents of children with a genetic disorder is only the beginning of
needed support services. One important member of the health team is the genetic support …

Genetic counseling is a growing health profession in South Africa. Training (set up in 1988)
and registration are in place, but job creation remains challenging. The aim of the present …

Genetic counseling is an evolving field in Saudi Arabia. In 2015, genetic counseling was
recognized as a Master's program by the Saudi Commission for Health Specialties. Our …