We describe three cases of newborns with complex CHD characterised by communication
challenges. These communication challenges were categorised as patient, family, or system …

Background and Objectives: Little data exist on provider perspectives about counselling and
shared decision-making for complex CHD, ways to support and improve the process, and …

Objective: To better understand parents' accounts of their prenatal and postnatal experience
after prenatal diagnosis of CHD–particularly emotional processing and coping mechanisms …

Objective: To characterise the parenting priorities of mothers and fathers of infants
hospitalised with CHD and generate recommendations to support parenting during infant …

Aims Although majority of significant CHDs (congenital heart defects) are diagnosed
antenatally, we still find occasional significant CHDs diagnosed postnatally. These present …

Background Patients with congenital heart disease (CHD) experience gaps in care,
increasing their risk of adverse outcomes. We describe the design of a digital tool that …

Background: An early warning tool, the Congenital Heart Assessment Tool (CHAT), was
designed in 2012 to support parental preparation before discharge, enhancing …

Objectives Many infants die in the year following discharge from hospital after surgical or
catheter intervention for congenital heart disease (3–5% of discharged infants). There is …

Congenital heart disease (CHD) is the most common type of birth defect, affecting
approximately 1 in 100 newborns. These heart abnormalities develop during pregnancy and …

Background: Parents of children with CHD face several barriers when trying to access the
services needed to support their child's development. In fact, current developmental follow …