Biobank governance: trends and perspectives

H Gottweis, K Zatloukal - Pathobiology, 2007 - karger.com
Biobanks are a challenge and topic for governance. Today, biobanks are identified as a
biomedical scientific/infrastructural development that warrants a political/legal/ethical …

Biobank governance: heterogeneous modes of ordering and democratization

H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …

Biobank governance in the post-genomic age

H Gottweis, G Lauss - Personalized Medicine, 2010 - Future Medicine
Biobank governance is about the regulation of the relationship between individual citizens,
society and biobanks. Its key agenda is to link society, citizens and biobanks with respect to …

From consent to institutions: designing adaptive governance for genomic biobanks

KC O'Doherty, MM Burgess, K Edwards… - Social science & …, 2011 - Elsevier
Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

Biobank governance: a lesson in trust

AK Hawkins, K O'Doherty - New Genetics and Society, 2010 - Taylor & Francis
Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …

[HTML][HTML] Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

D Chalmers, D Nicol, J Kaye, J Bell, AV Campbell… - BMC medical …, 2016 - Springer
Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …

Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law

G Laurie - Human genetics, 2011 - Springer
Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

[HTML][HTML] Constructing populations in biobanking

A Tupasela, K Snell, JA Cañada - Life sciences, society and policy, 2015 - Springer
This article poses the question of whether biobanking practices and standards are giving
rise to the construction of populations from which various biobanking initiatives increasingly …

[图书][B] Principles and practice in biobank governance

M Stranger - 2016 - books.google.com
Rapid technological advances, the establishment of large-scale biobanks, and the
exchange of data across international boundaries raise a variety of questions for regulators …

The human face of biobank networks for translational research

K Meir, EF Gaffney, D Simeon-Dubach… - Biopreservation and …, 2011 - liebertpub.com
The biobanking literature frequently addresses donor and societal issues surrounding
biobanking, but the biobanker's perspective is rarely highlighted. While not comprehensive …