Psychometric properties of a Turkish version of the quality of life in childhood epilepsy questionnaire

D Ayar, A Ünalp, M Bektaş, Ü Yılmaz… - Journal of Pediatric …, 2022 - Elsevier
Background Epilepsy is a neurological disease that requires long-term treatment and
monitoring and causes significant restrictions in physical, emotional, intellectual, and social …

Validating the shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐55) in a sample of children with drug‐resistant epilepsy

L Conway, E Widjaja, ML Smith, KN Speechley… - …, 2017 - Wiley Online Library
Objective The aim of this study was to validate the newly developed shortened Quality of Life
in Childhood Epilepsy Questionnaire (QOLCE‐55) in a sample of children with drug …

Trajectories of health‐related quality of life in children with epilepsy: a cohort study

MA Ferro, CS Camfield, SD Levin, ML Smith… - …, 2013 - Wiley Online Library
Purpose Little is known about subgroups of children with epilepsy who may experience less
favorable outcomes over time. The objectives of this study were to document trajectories of …

Evaluation of the responsiveness of the Impact of Pediatric Epilepsy Scale

GM Breau, CS Camfield, PR Camfield, LM Breau - Epilepsy & Behavior, 2008 - Elsevier
The Impact of Pediatric Epilepsy Scale (IPES) is an epilepsy-specific, health-related quality
of life (HRQOL) questionnaire that is brief, accurate, and valid and assesses the influence of …

Epilepsy-related clinical factors and psychosocial functions in pediatric epilepsy

S Eom, SH Eun, HC Kang, BL Eun, SO Nam, SJ Kim… - Epilepsy & Behavior, 2014 - Elsevier
Purpose The aim of this study was to identify the different influencing patterns of
demographic and epilepsy-related variables on various aspects of psychosocial function in …

Self‐reported quality of life and degree of youth‐parent agreement: A long‐term follow‐up of childhood‐onset epilepsy

K Puka, MA Ferro, CS Camfield, SD Levin, ML Smith… - …, 2020 - Wiley Online Library
Objective To prospectively delineate self‐reported health‐related quality of life (HRQOL) of
adolescents and young adults (AYAs) 8 and 10 years after an epilepsy diagnosis and …

Quality of life among caregivers of children with epilepsy: A cross‐sectional study at Eastern Nepal

R Pokharel, P Poudel, S Lama - Epilepsia open, 2021 - Wiley Online Library
Objective To assess the quality of life among caregivers of children with epilepsy in a tertiary
care center of eastern Nepal. Methods A cross‐sectional study was conducted among …

Health-related quality of life in children and adolescents with epilepsy: a systematic review

D Stevanovic, I Tadic, T Novakovic - Epilepsy in Children …, 2011 - books.google.com
With the patients' preferences in the centre of contemporary medicine, it was developed the
patient-reported outcome (PRO) concept that represents the patient's report of a health …

Development and cross‐cultural translations of a 31‐item quality of life in epilepsy inventory

JA Cramer, K Perrine, O Devinsky… - …, 1998 - Wiley Online Library
Purpose: We report the development of a questionnaire to assess health‐related quality of‐
life (HRQOL) in people with epilepsy and the process of cross‐cultural translations of the …

Development and validation of a measure of the impact of epilepsy on a young person's quality of life: Glasgow epilepsy outcome scale for young persons (GEOS-YP)

KH Townshend, L Dorris, MJ McEwan, SE Aylett… - Epilepsy & behavior, 2008 - Elsevier
OBJECTIVE: The goal of the work described here was to develop and validate a measure of
the impact of epilepsy on an adolescent's quality of life that is based on direct exploration of …